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The 15th International CHARGE Syndrome Conference will be held at Rosen Shingle Creek, Orlando, FL, July 20-23, 2023.

Join us in Orlando, Florida for the largest worldwide gathering of individuals with CHARGE, their families, professionals and experts on CHARGE syndrome.

Past attendees have compared Conference to a family reunion, a life-changing experience, and equated it to coming home…and after 4 long years we are ready to be together again! At conference, your family will get to share experiences, learn from one another, make lifelong friendships, experience a sense of belonging unlike any other, and hear from the world’s top experts in CHARGE syndrome. You don’t want to miss it!


Early Bird Incentive

Register and pay early and win a prize!

Everyone who registers and pays for conference by April 1 will be entered into a drawing:

  • 1st prize – 2 attendees will win one night standard room at the Conference hotel
  • 2nd prize – 2 attendees will win 6 sheets of raffle tickets ($50 value) to our basket auction


  • Adults (13 and over): $379
  • Children 12 and under, attending camp: $379  
  • Children 12 and under not attending camp: $279 
  • Individuals with CHARGE: FREE!
  • Professional Day (Thursday) only: $220  
  • Professional Day & Conference: $599 
  • One Day Only (Friday or Saturday): $249
  • Hotel room rate: $169 excluding taxes
  • Conference payments are due by June 1, 2023

Late Fees:

  • $50.00 per person (except individuals with CHARGE) from June 2 – July 15
  • $100.00 per person (except individuals with CHARGE) from July 16 to onsite

Reserve Hotel  Conference FAQs

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Click the links below for all the information you need about our upcoming Conference!

Conference Permissions and Policies

When and Where

What Can I Expect?

Who Can Attend?


How Do I Register?

What are the Funding Options Available to Families?

Opportunities for Professionals

Volunteer at Conference

Become an Exhibitor

Become a Sponsor

Top 10 Questions Asked About Conference

Start Fundraising

The 16th International CHARGE Syndrome Conference, “The Grand Adventure,” will be held in Phoenix, AZ , July 24-27, 2025.

Previous Conferences

The first CHARGE conference was held in 1993 in St. Louis, Missouri. It was attended by over 250 people, including about 50 children with CHARGE.

Since then, the biennial conference has grown in its significance and impact, attracting over 1,235 attendees and over 250 individuals with CHARGE at its most recent 2019 conference in Dallas, Texas. Roughly one-third of the attendees were first-time attendees, new parents, and professionals who were just coming to grips with how to deal with the myriad of medical and developmental issues facing their child.

Parents have described the conference as a rite of passage, a family reunion, a place to meet and network with others facing the same challenges, learn from professionals (medical, clinical and educational), and leave better informed about how to help their child. The Foundation’s volunteer board of directors (a working board) organizes all the activities related to the conference without the assistance of an event management firm.

We continue holding CHARGE conferences every two years with rotating geographic locations.

Explore past conference handouts:

Charge ONline 2021 logo

 CHARGE 2015 Conference Information ButtonTaking CHARGE in 2017 Orlando


CHARGE 2013 Conference Information ButtonCHARGE 2011 Conference Information ButtonCHARGE 2009 Conference Information Button