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Conferences

The past 9 months have presented a unique set of challenges for so many in our extended CHARGE family. As we moved closer to the hotel’s deadline to cancel the 15th International CHARGE Syndrome conference, “The Grand Adventure” in Phoenix, AZ, without significant financial penalties, we struggled with “making the right decision”: balancing the desire to get together with health and safety.  It is with a great deal of sadness that we announce that our 2021 conference will not be held in person. 

We are still going to present much-needed information to all of our families. The “Show Must CHARGE ONline” will be a virtual event in July 2021. Stay tuned for more details on exact dates, times, and format. We are a resilient group and will make the best of a difficult situation.

The 15th International CHARGE Syndrome conference will be held in Orlando, FL, July 20-23, 2023.  “The Grand Adventure” in Phoenix, AZ will be held in July 2025 (exact dates to come).

Charge ONline 2021 logo

 


Regional Events

The CHARGE Syndrome Foundation is pleased to offer financial support to families and organizations hosting regional family events. Click below to complete the funding request application.

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Previous Conferences

The first CHARGE conference was held in 1993 in St. Louis, Missouri. It was attended by over 250 people, including about 50 children with CHARGE.

Since then, the biennial conference has grown in its significance and impact, attracting over 1,235 attendees and over 250 individuals with CHARGE at its most recent 2019 conference in Dallas, Texas. Roughly one-third of the attendees were first-time attendees, new parents, and professionals who were just coming to grips with how to deal with the myriad of medical and developmental issues facing their child.

Parents have described the conference as a rite of passage, a family reunion, a place to meet and network with others facing the same challenges, learn from professionals (medical, clinical and educational), and leave better informed about how to help their child. The Foundation’s volunteer board of directors (a working board) organizes all the activities related to the conference without the assistance of an event management firm.

We continue holding CHARGE conferences every two years with rotating geographic locations.

 

Explore past conference handouts:

 CHARGE 2015 Conference Information ButtonTaking CHARGE in 2017 Orlando

CHARGE 2013 Conference Information ButtonCHARGE 2011 Conference Information ButtonCHARGE 2009 Conference Information Button

 

 

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