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We held our first conference in 1993 in St. Louis, Missouri. It was attended by over 250 people, including about 50 children with CHARGE.

Since then, the biennial conference has grown in its significance and impact, attracting over 1,200Large audience clapping at conference individuals at its most recent 2015 conference in Schaumburg, Illinois. Roughly half of the attendees were first-timers, new parents and professionals who were just coming to grips with how to deal with the myriad of medical and developmental issues facing their child.

Parents have described the conference as a rite of passage, a place to meet and network with others facing the same challenges, learn from professionals (medical, clinical and educational), and leave better informed about how to help their child. The Foundation’s board of directors (a working board) organizes all the activities related to the conference without the assistance of an event management firm.

We continue holding CHARGE conferences every two years with rotating geographic locations.


Taking CHARGE in 2017 Orlando13th International CHARGE Syndrome Conference:

Taking CHARGE in Orlando

Date: July 27-30, 2017
Location: Rosen Shingle Creek Hotel Orlando, Florida

New graphic2017 Conference Call for Presentations

Deadline: January 31, 2017

Notification of acceptance: March 1, 2017

Return date for confirmation by presenters: March 15, 2017

The program committee is seeking proposals from presenters and speakers for the 13th International CHARGE Syndrome Conference, which will take place July 25–28, 2013, in Orlando, FL. The conference serves as a venue to provide information to individuals with CHARGE syndrome, their families, and professionals. The event begins with Professional Day, followed by 2-1⁄2 days for the full conference.

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Don’t miss a single detail – ensure you are receiving foundation emails by eNews. Conference registration will begin on February 28, 2017. All the information will continue to be updated in the sections below.  Please email info@chargesyndrome.org with any questions.


Incentive Program: Participate for Prizes and Free Conference Registration!

Thanks to the generosity and fundraising efforts of all of our participants, their friends, families and colleagues, we raised approximately $800,000 over the past 8 years to support the mission and programming of the Foundation. We invested in more research, outreach, advocacy, conferences and direct assistance to our families.

Our work is far from done. We need everyone’s participation to be able to offer our families, professionals, volunteers, and researchers the support they need! We also want all of our families to be able to join us as we Take CHARGE in Orlando next year. So this year we are rolling out a new and exciting incentive* program.


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Raise $2,500 – Earn one (1) Free Conference Registration, Conference T-Shirt & Sweatshirt
Each Additional $2,500 Raised – Earn An Additional Registration (Up to maximum of 4 free registrations)
Raise $1,000 – Receive Free Conference T-Shirt & Sweatshirt
Raise $500 – Receive Free Conference T-Shirt
(Limit one (1) T-Shirt & one (1) Sweatshirt Per Fundraiser)

This incentive* will run from October 1, 2016 until June 1, 2017. Anyone who is a Charge It for CHARGE participant of a team will qualify for the incentive based on their individual fundraising efforts.

 Explore past conference handouts:

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