The 16th International CHARGE Syndrome Conference, “The Grand Adventure,” will be held in Phoenix, AZ , July 24-27, 2025.
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Join us in Phoenix, AZ for the largest worldwide gathering of individuals with CHARGE, their families, professionals and experts on CHARGE syndrome.
Past attendees have compared Conference to a family reunion, a life-changing experience, and equated it to coming home! At Conference, your family will get to share experiences, learn from one another, make lifelong friendships, experience a sense of belonging unlike any other, and hear from the world’s top experts in CHARGE syndrome. You don’t want to miss it!
Click the links below for all the information you need about Conference!
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Opportunities for Professionals
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2023 Conference Presentations
For an example of what you can expect, check out our 2023 Agenda.
2023 AGENDA
Previous Conferences
The first CHARGE conference was held in 1993 in St. Louis, Missouri. It was attended by over 250 people, including about 50 children with CHARGE.
Since then, the biennial conference has grown in its significance and impact, attracting over 1,235 attendees and over 250 individuals with CHARGE at its most recent 2019 conference in Dallas, Texas. Roughly one-third of the attendees were first-time att
endees, new parents, and professionals who were just coming to grips with how to deal with the myriad of medical and developmental issues facing their child.
Parents have described the conference as a rite of passage, a family reunion, a place to meet and network with others facing the same challenges, learn from professionals (medical, clinical and educational), and leave better informed about how to help their child. The Foundation’s volunteer board of directors (a working board) organizes all the activities related to the conference without the assistance of an event management firm.
We continue holding CHARGE conferences every two years with rotating geographic locations.
Explore past conference handouts:
