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The 16th International CHARGE Syndrome Conference, “The Grand Adventure,” will be held at the JW Marriott® Phoenix Desert Ridge Resort & Spa, in Phoenix, AZ , July 24-27, 2025.

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Join us in Phoenix, AZ for the largest worldwide gathering of individuals with CHARGE, their families, professionals and experts on CHARGE syndrome.

Past attendees have compared Conference to a family reunion, a life-changing experience, and equated it to coming home! At Conference, your family will get to share experiences, learn from one another, make lifelong friendships, experience a sense of belonging unlike any other, and hear from the world’s top experts in CHARGE syndrome. You don’t want to miss it!

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Learn about past attendees’ experiences first hand:

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Click the links below for all the information you need about Conference!

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Conference Presenter Information

For an example of what you can expect, check out our 2023 Agenda.

2023 AGENDA


Previous Conferences

The first CHARGE conference was held in 1993 in St. Louis, Missouri. It was attended by over 250 people, including about 50 children with CHARGE.

Since then, the biennial conference has grown in its significance and impact, attracting over 1,200 attendees and over 250 individuals with CHARGE syndrome at recent Conferences. Attendees include first-time attendees, new parents, individuals with CHARGE, families, and professionals all with the common desire to learn more about the myriad of medical and developmental issues facing individuals with CHARGE syndrome.

Parents have described Conference as a rite of passage, a family reunion, a place to meet and network with others facing the same challenges, an opportunity to learn from professionals (medical, clinical and educational), and a chance to participate in CHARGE research while becoming more informed about how to help their child.

We are committed to continue holding CHARGE conferences every two years with rotating geographic locations.

Explore past conference handouts:

Charge ONline 2021 logo

Taking CHARGE in 2017 Orlando

 

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View past Conference photos.

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