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Who Can Attend

The International CHARGE Syndrome Conference is for Individuals with CHARGE and their families, and professionals in the CHARGE field.

Individuals with CHARGE and their Families

Camp

We are pleased to offer a camp program for individuals with CHARGE and their siblings. Corporate Kids Events (CKE) will run our onsite camp and will provide fun, entertaining activities for the kids while the adults attend conference sessions. Arts and crafts, magic shows, and petting zoos have been part of the camp program during prior conferences.

There are two camp options: Camp Discovery and Camp Explorer.

Camp Discovery has a higher staff to camper ratio (less staff per # of campers), for siblings and more independent campers.

Camp Explorer has more structure and more staff.

  • Both camps will be together for certain activities.
  • There will be a professionally-staffed calm room containing sensory items and a soothing atmosphere, which will be available if campers need a space/time to calm down.
  • Camp is free for all individuals with CHARGE but all campers must be registered.
  • Registration for camp will open at the same time as conference registration, in Spring 2022.
  • Your caregiver may attend camp with your child. The caregiver must be registered for conference.

Camp requires a separate registration. Camp registration will open in Spring 2023.

Sibshops

Having a brother or sister with CHARGE is not always easy. Sibshops provides siblings aged 8-13 a safe place to meet, share – and just have fun – with other siblings who know exactly how they feel.

SPACE IS LIMITED Members get priority at registration

Professionals

The CHARGE Syndrome Conference is unique in that experts in the field are available to speak with families throughout the weekend. The respect is mutual. Professionals learn as much from families as families do from them.

Professional Day

The CHARGE Professional Day Conference is on Thursday, prior to the start of the International CHARGE Syndrome Conference. Professional Day is an opportunity for CHARGE professionals to come together to share information, research and best practices with one another and the presentations are specifically for that audience. This one day conference includes plenary presentations of interest to all professionals, breakout sessions in the areas of Medical/Clinical and Educational/Therapy, and time during the poster session, lunch and breaks to allow meeting and mingling among CHARGE professionals.

Most of these professionals will stay on for the International Conference and many will be presenting their information at the International Conference with their talks geared toward families and individuals with CHARGE.

Note: Families may attend professional day, but it is geared toward professionals. There is no camp on Professional Day.

The registration fee for attendance at Professional Day is $220.

Posters & Information Central

Professionals are invited to prepare posters summarizing their work for presentation during Professional Day and the main conference. During Information Central conference attendees will have the ability to view the posters and ask questions.

Research

We all want to learn more about CHARGE, and that means research. Because CHARGE is relatively rare, most professionals only see a few affected individuals in their local practices. Conference attracts hundreds of individuals with CHARGE and their families, providing a wealth of potential research opportunities for the researchers and for families. Previous conferences have included everything from collecting DNA to interviews about feeding, language and behavior. There will be an area dedicated to the various research projects being conducted at conference.

More details will be coming as we get closer to Conference.

Sandra Davenport Fellowship Program

The Davenport Fellowship program was established in 2015 to facilitate mentoring of the next generation of CHARGE professionals. By bringing the Fellows to the CHARGE conferences early in their careers, we hope to educate the next generation of professionals and encourage them to become more engaged with the greater CHARGE community. The CHARGE conferences are the best opportunity for professionals to learn more about CHARGE, to interact with one another and get to know families. Davenport Fellows may include graduate students (genetic counseling, psychology, therapy, etc), medical students (upper level students, residents or fellows), and other professionals who will deal with individuals with CHARGE during their careers. The Fellows will attend both Professional Day and the International Conference and meet each day with each other and the mentors for the program. Each Fellow will also be matched with a family and spend a half day in Camp with the child from that family. Some may have presentations or posters during the weekend.