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Who Can Attend

The International CHARGE Syndrome Conference is for Individuals with CHARGE and their families, and professionals in the CHARGE field.

Individuals with CHARGE and their Families

Camp

We are pleased to offer a camp program for individuals with CHARGE and their siblings. Corporate Kids Events (CKE) will run our onsite camp and will provide fun, entertaining activities for the kids while the adults attend conference sessions. Arts and crafts, magic shows, and petting zoos have been part of the camp program during prior conferences.

There are two camp options: Camp Discovery and Camp Explorer.

Camp Discovery has a lower staff to camper ratio (less staff per # of campers), for siblings and more independent campers.

Camp Explorer has more structure and more staff.

  • Both camps will be together for certain activities.
  • There will be a professionally-staffed calm room containing sensory items and a soothing atmosphere, which will be available if campers need a space/time to calm down.
  • Camp is free for all individuals with CHARGE but all campers must be registered.
  • Registration for camp will open at the same time as Conference registration, in Spring 2025.
  • Your caregiver may attend camp with your child. The caregiver must be registered for conference.

Camp requires a separate registration. Camp registration will open in Spring 2025.

Sibshops

Having a brother or sister with CHARGE is not always easy. Sibshops provides siblings aged 8-13 a safe place to meet, share – and just have fun – with other siblings who know exactly how they feel.

Sibshops are held during the day at the same time as conference sessions and camp.  If a sibling is attending camp, the sibshop leaders will escort the sibling to and from camp. A sibling may attend one half-day session of sibshop.

If there is enough interest, a teen sibshop will be offered for siblings ages 14-18.  The teens will gather together to share their experiences of having a sibling with CHARGE.   You do not need to have attended sibshop at a previous conference to attend Teen sibshop.

Junior leaders are siblings 14 years and older who will assist the Sibshop facilitators.  You do not need to have attended sibshop at a previous conference to be a Junior leader.

SPACE IS LIMITED Members get priority at registration

Professionals

The CHARGE Syndrome Conference is unique in that experts in the field are available to speak with families throughout the weekend. The respect is mutual. Professionals learn as much from families as families do from them.

Click here to learn more about opportunities for professionals and researchers at Conference.