Children with CHARGE syndrome present as unique individuals who, despite having a myriad of health and developmental challenges, are resilient and interesting and surprising in their zest for life and willingness to join in all that is offered to them
. However, their parents and specialists may note specific behaviors that can interfere with their educational and social success. Medical and behavior specialists may be called in to identify specific diagnoses, such as anxiety and obsessive compulsive disorder, and the need for a Board Certified Behavior Analyst. We hope these resources can assist in your care for children and young adults with CHARGE syndrome.
- Education Professional Packet
- Top 10 Strategies for Promoting Positive Behavior
- Origins of Behavior
- Behavior in CHARGE
- American Journal of Medical Genetics Special Series of Articles on Behavior in CHARGE Syndrome
- Webinars/Awareness Month Themes
- Why Does My Child Do That?: Compulsive Behavior and OCD
- A Conversation About Intellectual Assessment
- About CHARGE
- Sense UK Info sheets
- CHARGE Syndrome Book
- CHARGE Lab@CMU
- CHARGE Non-Vocal Pain Assessment
- We have CHARGE, So what?
- Perkins School for the Blind/Deafblind Program
- Texas School for the Blind and Visually Impaired
- National Center on Deaf-Blindness
