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Webinars

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The CHARGE Syndrome Foundation is pleased to provide you with webinars on a variety of topics which affect individuals with CHARGE and their families. If you have a suggestion for a future webinar topic, please send it to info@chargesyndrome.org.

 

 

Ask the Expert Series Dates:

(Click on past dates to view the recordings and upcoming dates to register)

2022

January 19 – Brenda Bujold, Intervener
Brenda is a nationally certified Intervener, the first certified in Michigan, with an education and specialized training in deafblindness, and works one-on-one with a student with CHARGE who is deafblind.

February 16 – Bethany Jung, MS RD CNSC CLC
Bethany is a Registered Dietitian, Certified Nutrition Support Clinician specializing in tube feedings and IV nutrition, and Certified Lactation Counselor, currently working in the NICU at St. Peter’s University Hospital in New Brunswick, NJ.

April 21 – Dr. Brittany Simpson, MD
Assistant Professor, Clinical Geneticist at Cincinnati Children’s Hospital Medical Center

May 19 – Lily Slavin, Educational experiences of individuals with CHARGE and the Checklist of Educational Needs for Individuals with CHARGE Syndrome
The Checklist of Educational Needs for Individuals with CHARGE Syndrome” is a tool that can be used by school teams and early intervention specialists to help guide educational services for individuals with CHARGE syndrome. Since CHARGE syndrome is extremely complex and variable, school teams must understand these five domains in which individuals with CHARGE are commonly affected: medical, sensory, communication, developmental, behavioral. During the webinar you will understand how the checklist could be utilized by a multidisciplinary team as a starting point for brainstorming possible services for individuals with CHARGE syndrome. 

Stay tuned for upcoming new topics…

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For additional recorded webinars on deaf-blindness, please visit the National Center on Deaf-Blindness.

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CHARGE Syndrome Foundation Archived Webinars

Getting Real: Siblings Sharing Their Perspectives
(Webinar Recording)

Getting Real: Extended Family Sharing Their Journey
(Webinar Recording)

Getting Real: Parents Sharing their Journey through Elementary School
(Webinar Recording) (Closed Captions File)(PowerPoint File)

Getting Real: Parents Sharing their Journey through Upper Elementary School into High School
(Webinar Recording) (Closed Captions File)(PowerPoint File)

Structure At Home: Let’s Build It!
(Webinar Recording) (Closed Captions File)(PowerPoint File)

The Role of the Family in the IEP Process
(Webinar Recording) (Closed Captions File)

Lessons Learned: A Parent Panel 2020
(Webinar Recording) (Closed Captions File)

The Power of the Deaf-Blind Network: What’s in it for you?
(Webinar Recording) (Closed Captions File) (PowerPoint File)

Using Photos to Tell Your Child’s Story
(Webinar Recording) (Closed Captions File)(PowerPoint File)

Interpreter or Intervener: Which Will Meet the Educational Support Needs of Your Child?
(Webinar Recording) (Closed Captions File)

Laying the Foundation for Communication Exchange: Practical Strategies
(Webinar Recording) (Closed Captions File) (PowerPoint File)

Laying the Foundation for Communication Exchange:  Critical Points of Understanding
(Webinar Recording) (Closed Captions File)

Impact of a Child with Complex Needs on the Family and the Importance of Self-Care
(Webinar Recording) (Closed Captions File) (PowerPoint File)

Lessons Learned – A Parent Panel
(Webinar Recording) (Closed Captions File)

Charting the Life Course
(Webinar Recording) (Closed Caption File) (Slide 48 – YouTube Link) (Slide 52 – YouTube Link)

Interveners – Part 1:
Who are they?  Why are they critical for individuals with deafblindness?
(Webinar Recording) (Closed Captions File)

Interveners – Part 2:
What training is required and how can the need for Intervener services be determined?

(Webinar Recording(Closed Captions File)

Interveners  Part 3:
How can parents advocate for Intervener services for their children?

(Webinar Recording(Closed Captions File)

Conference 101
(Webinar Recording) (Closed Captions File)

Ask The Expert: Q&A With David Brown
(Webinar Recording) (Closed Captions File) (PowerPoint File)

Strategies that Work in the Home and in the Community
(Webinar Recording) (Closed Captions File) (PowerPoint File)

Why Does My Child Do That? Compulsive Behaviors and OCD in CHARGE Syndrome
(Webinar Recording) (Closed Captions File)

CHD7 and CHARGE Syndrome Research: Unveiling the Mysteries
(Webinar Recording) (Closed Captions File)

Pain Issues in CHARGE
(Webinar Recording) (Closed Captions File)

The Forgotten Senses
(Webinar Recording) (Closed Captions File)

CHARGEing Into the Teens
(Webinar Recording) (Closed Captions File)

Techniques to Improve Feeding Skills and Speech Clarity
(Webinar Recording) (Closed Captions File)

Top Ten Strategies for Promoting Positive Behavior
(Webinar Recording) (Closed Captions File)

Physical Education for Children who are Deafblind
(Webinar Recording) (Closed Captions File)

A Conversation about Intellectual Assessment: What Parents Need to Know
(Webinar Recording) (Closed Captions File)