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Resources

Finding information about CHARGE syndrome can be a daunting task. You might be looking for something specific (medical information, for example) and don’t know where to start. OR you Google it and so much comes up that you don’t know how to sift through it. Parents, family members, professionals from all specialty areas come to our website to be better informed. Our goal is to make sure we can provide that information in an organized and helpful way. Therefore, we have searched the world and our own archives to bring you information about CHARGE syndrome.
We hope that this page gives you a good start and guides you to what you are looking for.

We invite you to suggest other resources for inclusion here so that others can learn from your experience.

  CSF WebinarsSpeaker SeriesPublicationsCHARGE Accounts Newsletter

 

 

 

 

Behavior Pain AssessmentVideosResearch PublicationsEmergency & Records Toolkit

 

 

 

 

 

 

Support Groups Other Deafblind Organizations Helpful WebsitesOther Resources

 

 

 

 

 

Factsheets

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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