CHARGE Syndrome Foundation Video
A video about the CHARGE Syndrome Foundation and what we do.
Our Videos
Cincinnati Children’s CHARGE Center Conference 2016 Videos
- Keynote: Nothing in CHARGE is 100%, But It Can Be Just About Anything: Conundrums, Puzzles, and Mysteries – Meg Hefner
- Blenderized Diet and Nutrition – Dr. Scott Pentiuk and Therese O’Flaherty
- Q&A Session – Dr. Susan Wiley and David Brown
- CHARGE Syndrome After 33 Years: Developmental and Educational Aspects – David Brown
- Secretions Management – Dr. Catherine Hart
- Parent Panel – Facilitator Nikki Logsdon
- Medical Reasons for Behavioral Symptoms – Dr. Susan Wiley
Perkins School for the Blind Webinars and Webcasts
Perkins eLearning
Accessible Books and Literacy: Supporting and Encouraging a Love for Literacy
The National Center on Deaf-Blindness (NCDB) Professional Development Series:
Deaf-Blind Strategies
These should be of interest to families, educators, state deaf-blind project personnel, and any other individuals interested in deaf-blindness in children and youth. Topics include: Establishing Routines at Home; Early Literacy and Numeracy for Students who are Deaf-Blind; IEP Development; Academic Standards for Students with Significant Cognitive Disabilities; Accessing Grade Level General Education Curriculum; and Meeting the Needs of Proficient Communicators.
Deaf-Blind Strategies
NCDB hosted a webinar for Spanish-speaking families to share their personal experiences, including their struggles and successes. It was conducted in Spanish, with English captions available.
Shifting Your Perspective: Lessons and Insights from Spanish-Speaking Families
Other Webinars
We Have CHARGE, So What! Video:
The German CHARGE Syndrome Association has produced a video of young adults who have CHARGE discussing their lives, living with CHARGE, their hopes and dreams. We have CHARGE, so what! from Claudia Junghans on Vimeo.
http://vimeo.com/99061347
Got Balance? Balance and Stability Activities for Children with CHARGE Syndrome Video:
This video provides examples of activities that can be done to improve balance and stability in children who have CHARGE syndrome. By Lauren Lieberman, Ph.D, Pamela Haibach-Beach, Ph.D, Melanie Perreault, Ph.D, Aaron Wood, Jennifer Vanetten, Jenna Sherwood.
