CHARGE Accounts

December 2022

Articles Include:

• Giving Tuesday
• Year-End Gratitude
• CHARGE Holiday Gift
• Lifetime Membership
• Holiday Shopping with Amazon Smile
• Medical Travel Assistance Program
• Participate in CHARGE Research
• Upcoming Events

November 2022

Articles Include:

• Holiday Pre-Sale Items
• Black Friday Shopping with Amazon Smile
• Giving Tuesday
• Welcome New State Liaisons
• 2022 Marcus Velásquez Service Award
• Birth to 3 Parent-to-Parent Support Group
• Bill McCarthy Memorial Golf Tournament
• 4to24 App: Transition Guidance for Parents
• CHARGE Research
• Upcoming Events

October 2022

Articles Include:

• A Day to Remember 2022
• 30 for 30!
• Lifetime Membership
• Profiles in CHARGE – Gabi’s Story
• CHARGE for Connor
• Upcoming Events

September 2022

Articles Include:

• 15th Annual Charge it for CHARGE Campaign
• Attend Conference for Free
• Lily Slavin, PhD Joins the Board
• New Development & Database Coordinator
• A Day to Remember
• Profiles in CHARGE – Shannon’s Story
• Upcoming Events

August 2022

Articles Include:

• 15th International CHARGE Syndrome Conference Planning Kickoff
• Conference Hotel Reservations Open
• Conference Sponsorship Opportunities
• Back-t0-School Shopping on Amazon Smile
• Profiles in CHARGE – Rafael’s Story
• Upcoming Events

July 2022

Articles Include:

• Summer Activities
• Travel Tips
• Shop Amazon Prime Days with Amazon Smile
• Crocker Barker Sibling Scholarship 2022 Winners
• Give Up Your Cup Fundraiser
• Charge It for CHARGE
• Upcoming Events

June 2022

Articles Include:

• 3rd Annual Walk and Roll for CHARGE
• New Outreach and Engagement Manager
• Sibling Spotlight
• Important Dates
• Fundraising with Facebook
• Upcoming Events

May 2022

Articles Include:

• A President’s Message: New Beginnings
• Crocker Barker Sibling Scholarship
• 3rd Annual Walk and Roll for CHARGE
• New Yeti Tumbler
• Sibling Project
• Ask the Expert
• Upcoming Events

April 2022

Articles Include:

• 3rd Annual Walk and Roll for CHARGE
• Spring Bulb Fundraiser
• Ethan Wolfe Recreational Assistance Program
• Fundraiser Spotlight – CHARGE Through the Year
• Amazon Smile
• Ask the Expert with Dr. Brittany Simpson
• Upcoming Events

March 2022

Articles Include:

• Welcome New Board Members
• Medical Travel Assistance Program
• Rare Disease Day 2022
• Welcome New State Family Liaisons
• Ask the Expert – Facebook Lives
• Upcoming Events

Summer 2020

Articles Include:

• President’s Message
• Back to School? More Questions Than Answers.
• Remote Learning Resources
• Accessible Story Time!
• What’s Something Surprising That You Learned About Your Child or Your Family During This Pandemic?
• Family Assistance Program Update
• A Day To Remember
• Focus On Fundraising
• New Masks In Our Awareness Store

Winter 2020 (PDF, 1.1 MB)

Articles Include:

• President’s Message
• Carson Rocks Rare Disease Day
• CHARGE Syndrome in the News: What Do I Say?
• Everyone Deserves a Chance to Play
• David Brown Educates in AZ and SC
• Michigan Family Gathering
• Focus on Fundraising
• Fellows Reflections from the 2019 Conference
• Understanding CHARGE Syndrome: Free Online Course

Fall 2019 (PDF, 1.1 MB)

Articles Include:

• President’s Message
• Deep in the Heart of CHARGE
• The Third Class of Sandra Davenport CHARGE Syndrome Fellows
• CHARGE Conference Research – Past, Present and Future
• Make an Impact. Make a Difference.
• Focus on Fundraising
• October is National Disability Employment Awareness Month
• iCanConnect

Winter 2019 (PDF, 2 MB)
Articles Include:

• President’s Message
• Conference Information & Important Deadlines
• What You Need to Know Before Your Child Turns 18
• What About Adults?
• Emmet’s Run for CHARGE
• Dymonte Thomas of the Denver Broncos
• Good Friends Co-Op CHARGE Syndrome Fair & Fundraiser
• Fellows Reflections from the 2017 Conference

2018:

Fall 2018 (PDF, 21 MB)
Articles Include:

• President’s Message
• A CHARGE Conference is a Life-Changing Experience!
• A Day to Remember
• CHARGE Foundation State Family Liaison Project
• North Carolina Family Hosts Summer Lake Party
• Jonas’ Cookery School
• A Hidden Bowel Defect
• CHARGE Doesn’t Stop Us From Traveling
• Fellows Reflections from the 2017 Conference

Summer 2018 (PDF, 27.54 MB)
Articles Include:

• President’s Message
• CHARGE Syndrome Foundation 25th Anniversary
• Conference Connections
• EWRAP Awards
• Fellows Reflections
• College and Beyond!
• A Leap of Faith
• Creativity Corner
• Focus on Fundraising

Spring 2018 (PDF, 11.28 MB)
Articles Include:

• President’s Message
• Facebook Top Topics
• FAQs & Some Answers
• To the Naysayers
• This Kid Goes to College!
• New Faces on the Executive Committee
• Fellows: Reflections from the 2017 Conference
• Awards & Honors
• Creativity Corner with Meri Dwyer
• Planning Ahead

 Winter 2018 (PDF, 3 MB)
Articles Include:

• Director of Outreach Update & Intervener Webinar Series
• Remembering Dr. Jan van Dijk
• KeepOns for Glasses
• Wanted: Committee Members
• Focus On Fundraising
• Announcements
• Fellows: Reflections from the 2017 Conference
• Creativity Corner with Meri Dwyer
• Strategies & Equipment to Assist Movement

2017:

Fall 2017 (PDF, 5.25 MB)
Articles Include:

• A New Friendship
• Conference Highlights
• 2017 Davenport CHARGE Syndrome Fellows
• Focus on Fundraising
• Enhancing Movement Opportunities in Your Home
• Research Update

Spring 2017 (PDF,1.90 MB)
Articles Include:

• Conference Prep & Insight
• Davenport CHARGE Fellows Announced
• EWRAP Recipients
• Appropriate Physical Education Service in Schools: Laws and Knowledge
• Focus on Fundraising

Winter 2017 (PDF, 3.95 MB)
Articles Include:

• Conference Information
• The Importance of Movement for Individuals with CHARGE syndrome
• Diego’s Superhero Adventure
• Oh, Booger!
• 3rd Annual Ethan Wolfe Recreational Assistance Program
• Sandra Davenport Fellowship Program
• Why It’s OK to Ask Me About My Child
• Embracing the Different
• Chromatin in Development & Disease

 

2016:

Fall 2016 (PDF, 2 MB) – Special Conference Issue
Articles Include:

• Learning Together: Program
• Being Together: Sessions & Schedule
• Professional Day
• Scholarships
• Call for Presentations
• Camp
• The Hotel & Meals
• Orlando Area
• Registration
• Conference Funding Guide

 

Summer 2016 (PDF, 2 MB)
Articles Include:

• In Memory of Marion
• Personal Passports
• EWRAP
• Davenport Fellows
• Deaf-Blind Summit report
• Family Leadership
• Applying for Disability
• Charge It for CHARGE

Spring 2016 (PDF, 1.24 MB)
Articles Include:

• Communication Challenges
• Parent Connections
• Data Dispatch
• Focus on Fundraising
• Taking CHARGE!

Winter 2016 (PDF, 1.39MB)
Articles Include:

• Insight into Adulthood
• Davenport Fellows
• Parent Liaisons
• 2nd EWRAP Campaign

2015:
Fall 2015 (PDF, 3.6MB)
Articles Include:

• Conference Recap
• Research at Conference
• First Ethan Wolfe Recreational Assistance Program Recipients
• Eighth Annual Charge It for CHARGE

Spring 2015 (PDF, 1.21MB)
Articles Include:

• Upcoming CHARGE research at conference
• Honoring Kathy McNulty
• Sandra Davenport CHARGE Syndrome Fellows Program
• Siblings Advice
• Power of Families as Communication Partners

2014:
Fall 2014 (PDF, 2.49MB)
Articles Include:

• U of Michigan Honors Meg Hefner
• Webinar Updates
• Board Nominations
• Stories from the CHARGE Community

2013:
Summer/Fall 2013 (PDF, 9.47MB)
Articles Include:

• 11th International CHARGE Syndrome Conference Recap
• Accommodation Cards
• Outreach Infomercial

Spring 2013 (PDF, 1.1MB)
Articles include:

• Social Media: Is It Really Helpful? It’s How You Use It
• Open Hands, Open Access: Deaf-Blind Intervener Learning Modules
• The Diagnosis Is Not the Person

2012:
Winter 2012 (PDF, 2.2MB)
Articles include:

• Sucessful Adult Outcomes for Students in Transition
• Bedwetting Solution
• I Can Connect! Technology Program

Fall 2012 (PDF, 2.8MB)
Articles include:

• Social Skills: Social Skills & Video Modeling
• Research Update
• Conference Funding Guide

Summer 2012 (PDF, 2.27MB)
Articles include:

• iPads and the Itinerant
• Conversations and Creativity (original writings by individuals with CHARGE)
• Save the Date: 11th International CHARGE Syndrome Conference (Scottsdale, AZ)

Spring 2012 (PDF, 4.3MB)
Articles include:

• So Many Ways to Have a Conversation– Full article on communication by Martha Majors from the Spring 2012 edition of CHARGE Accounts
• Introducing CHARGE to the Classroom
• Many Ways to Have a Conversation
• New Screening Method for CHD7

2011:
Winter 2011 (PDF, 1.47MB)
Articles include:

• Potty Training from a Parent’s Perspective
• CHARGE Clinics and Seminars
• Texas Chargers—6th Annual Retreat

Summer/Fall 2011 (PDF, 1.75MB)
Recap of 10th International CHARGE Syndrome Conference (Orlando, FL)

Spring 2011 (PDF, 751K)
Articles include:

• Taking CHARGE of Communication
• Going Back to Work: Sharing Our Experiences

2010:
Winter 2010 (PDF, 1.07 MB)
Articles include:

• CHARGE Foundation Quotes 2010
• Learning About CHARGE from Flies
• Families’ Perceptions of Disability-Related Supports and Services: Report of a National Survey of Families Who Have
• Children with Deafblindness

Fall 2010 (PDF, 1.03 MB)
Articles include:

• Surviving CHARGE Syndrome as a Person Who Has CHARGE
• Using Augmented Input Intervention Strategies
• Survival Strategies: Six Tips
• The MAPs Planning Process

Summer 2010 (PDF, 1.0 MB)
Articles include:

• Family Planning special issue

Spring 2010 (PDF, 1.04MB)
Accessible, text-only version (76K)
Articles include:

• Addressing Social Challenges of Students with CHARGE Syndrome in Middle School
• Supporting Young Adults with CHARGE Syndrome Toward Successful Transition to Adult Life
• Strategies for Supporting Multi-Modal Communication

2009:
Winter 2009 (PDF, 1.09MB)
Articles include:

• Focus on Fundraising issue
• Charge It for CHARGE: A Step-by-Step Guide
• Websites for Parents of Children with CHARGE Syndrome

Summer/Fall 2009 (Double Issue: PDF, 2.9 MB)
Articles include:

• Recap of 9th International CHARGE Syndrome Conference (Bloomingdale, IL)

Spring 2009 (PDF, 724K)
Articles include:

• 3rd Annual CHARGE Retreat in Denton, TX
• Topics from the CHARGE Listserv
• Information on 9th International CHARGE Syndrome Conference (Bloomingdale, IL)

2008:
Winter 2008 (PDF, 547K)
Articles include:

• People First Language
• Finding Funds to Attend Conference

Fall 2008 (PDF, 670K)
Articles include:

• Recap of Tennessee CHARGE Syndrome/Deafblind Weekend
• Websites to Help with Holiday Shopping

Summer 2008 (PDF, 1270K)
Articles include:

• Marion is 75, CHARGE Syndrome Foundation is 15
• CHARGE Syndrome Foundation: Major Milestones
• Tribute to Marion Norbury

Spring 2008 (PDF, 359K)
Articles include:

• Personal Account: VitalStim Therapy
• New at the Website: CHARGE Syndrome Professional Packet

2007:
Fall 2007 (PDF, 546K)
Articles included:

• Recap of 8th International CHARGE Syndrome Conference (Costa Mesa, CA)

Summer 2007 (PDF, 171K)
Articles include:

• Travel by Air
• Chronic Pain in CHARGE

Spring 2007 (PDF, 131K)
Articles include:

• Special Account: Pain issue
• Fundraiser in a Box

2006:
Winter 2006 (PDF, 1.0 MB)
Articles include:

• Independence Day: Our Story
• Collaboration Between the CHARGE Syndrome Foundation and Other Organizations

Fall 2006 (PDF, 620 K)
Articles include:

• International Account: News from Germany
• Strategies for Successful Medical/Dental Appointments for Individuals Who Are Deaf-Blind

Summer 2006 (PDF, 604 K)
Articles include:

• Adele’s Cochlear Implant Journey
• Report on the Adult Services Committee

Spring 2006 (PDF, 1.1 MB)
Articles include:

• Personal Accounts: Joel Saruski, Aaron Sorkin, Andrew–His 36 Hours, Laura Kenley
• Intervention in Kentucky

2005:
Winter 2005 (PDF, 3.9 MB)
Articles include:

• CHARGE Syndrome Fundraiser: Texas Style
• Botox Use in CHARGE Syndrome Prevents Tracheotomy

Fall 2005 (PDF, 560 K)
Articles include:

• Personal Account: Then and Now
• Recap of 7th International CHARGE Syndrome Conference (Miami, FL)

Summer 2005 (PDF, 284 K)
Articles include:

• A Review of Research Projects
• Educational and Behavioral Implications of Missing Balance Sense in CHARGE Syndrome

Spring 2005 (PDF, 550 K)
Articles include:

• DNA Testing for CHARGE Syndrome
• Memorial Gifts Create Lasting Tribute to Central Michigan University Student

2004:
Fall 2004 (PDF, 688 K)
Articles include:

• A CHARGE Gene Discovered
• Suggestions for Creating Successful Transitions from School to Adulthood