CHARGE Accounts Newsletters
CHARGE Accounts is a monthly newsletter published by the CHARGE Syndrome Foundation primarily for individuals with CHARGE syndrome, parents/family of children with CHARGE syndrome, and medical and educational professionals working with individuals who have CHARGE syndrome. Click here to be added to our mailing list.
CHARGE Accounts Newsletter Submission Guidelines
Newsletters
October 2026
- The 17th International CHARGE Syndrome Conference: Hotel Room Block Now Open
- Share Your Expertise – Present at Conference
- Further Your Education – Become a Sandra Davenport Fellow
- Help Improve Healthcare for Adults with CHARGE
- The 2027 Research Grant Cycle is Now Open
- Ask the Expert: Holding It All Together: Family Life, Resilience and Connection
- Upcoming Events
September 2026
- Charge It for CHARGE to Supercharge Your Fundraising!
- Grief Support Group for Families of Children with Deafblindness
- A Day to Remember
- Call for Conference Presentations
- New Conference Sponsorship Opportunity for Families
- Managing Your Child’s IEP
- Family Liaison Corner: An Afternoon of Fun and Connection
- Adults with CHARGE Corner – Meet Marìa Alejandra
- Upcoming Events
August 2026
- Conference Planning Kicks Off with a Board Meeting at Hilton Anatole
- Ask the Experts: Panel on CHARGE and Autism
- EWRAP – Even Adults Deserve a Chance to Play!
- Prepping for Back-to-School
- Research Opportunity: Atypical? Mild? Severe? – Share Your Perspective on CHARGE Syndrome Severity Language
- JD’s Journey with CHARGE Syndrome and Special Olympics
- CHARGE Corner – CHARGE Adult Socials
- Upcoming Events
July 2026
- A Message from Our New Board President
- Make a Difference – Become a Conference Sponsor
- Deafblind Awareness Week
- CHARGE Syndrome Awareness Day
- Support the Foundation with a Delicious Meal!
- Siblings in CHARGE
- Upcoming Events
June 2026
Articles Include:
- Announcement of the 17th International CHARGE Syndrome Conference Theme
- Help Make Conference a Success!
- Summer Fun – Warm Weather Activities
- Ask the Expert: The Ways You Can Play! A Review of Recreational Equipment and Programming
- 2026 Recipients of the Crocker Barker CHARGE Sibling Scholarships
- Become a Family Liaison
- Check Out Our Hot New Designs!
- Adults with CHARGE Corner – Meet David
- Upcoming Events
May 2026
Articles Include:
- Making the World a Better Place for People with CHARGE Syndrome Through Walk and Roll!
- Davenport Fellows Awarded Foundation Scientific Grant to Understand Clinical Classification in CHARGE Syndrome
- Ask the Expert: Thick and Thin, Up and Down, and All Around: A Comprehensive Approach to Secretion Management in CHARGE Syndrome
- Recording Available for Ask the Expert Webinar: Medical Issues in Adults with CHARGE Syndrome
- Liaison Spotlights
- Adults with CHARGE Corner – Meet Shannon
- Upcoming Events
April 2026
Articles Include:
- Walk and Roll is Just a Few Weeks Away
- Crocker Barker CHARGE Sibling Scholarship Application is Now Open
- Ask the Expert: Medical Issues in Adults with CHARGE Syndrome
- A New Chapter in Leadership
- Program Highlight – Stay Active this Summer with EWRAP
- Adults with CHARGE Corner – Meet Natalie
- Upcoming Events
March 2026
Articles Include:
- Official Walk and Roll T-Shirt Deadline Approaching
- A Community That Walks Beside Us
- Ask the Expert: Integrating Deafblindness into the IEP: Strategies for Success
- Very Thankful: A Medical Travel Assistance Story
- Landing Homes for Healing
- We Loved Our Stay!
- Illinois CHARGE Family Meetup
- Adults with CHARGE Corner – Meet Mariana
- Upcoming Events
February 2026
Articles Include:
- Register Now for Walk and Roll for CHARGE
- Order Your Official Walk and Roll T-Shirt and Hoodie
- Get Recognized with Walk and Roll for CHARGE
- Ask the Expert: Behaviors, Communication, and Connection
- Feeding Tube Awareness Week
- Rare Disease Day
- Parent Re-CHARGE Hour Returns
- Adults with CHARGE Corner – Meet Rafael
- Upcoming Events
December 2025
Articles Include:
- President’s Year-End Message
- Together We Have Reached New Heights
- Giving Tuesday and Year-End Giving
- Lead the Way – Apply to Join Our Board Today!
- New for the New Year – Adults with CHARGE Corner
- Reflections From a Davenport Fellow
- Upcoming Events
November 2025
Articles Include:
- Help Lead the Way – Apply to Join the Board
- Meet the New Family Liaisons
- Navigating CHARGE Syndrome as a Military Family
- CHARGE On! – Giving Tuesday
- New Research Opportunity: Exploring Pain in CHARGE
- Medical Travel Tips
- Help us name our 17th International CHARGE Syndrome Conference
- Upcoming Events
October 2025
Articles Include:
- Celebrating Our Incredible Volunteers
- New Charge it for CHARGE Campaign Begins!
- Research Grant Cycle Opens
- The Importance of Community
- Reflections from a Sandra Davenport Fellow
- Research Opportunities for Families
- Upcoming Events
September 2025
Articles Include:
- The Rise of the Phoenix at Conference
- Reflections on Conference
- Volunteering with the Foundation
- Always in Our Hearts – A Day to Remember
- Millie’s Medical Travel Journey
- Upcoming Events
August 2025
Articles Include:
- 16th International CHARGE Syndrome Conference
- CHARGE Family Sports and Recreation Workshop
- 17th International CHARGE Syndrome Conference
- Thank You Conference Sponsors
- 2nd International CHARGE Syndrome Awareness Day
- Ask the Expert: Creative Café:Person-Centered Scrapbook-Making
- Music Therapy for Sophia
- Upcoming Events
June 2025
Articles Include:
- Growing Up at Conference – A Sibling’s Perspective
- 6th Annual Walk and Roll for CHARGE
- Logan Marty BBQ Fundraiser
- International CHARGE Syndrome Awareness Day
- New Bikes for Christian and Logan
- Be a Part of the First Ever CHARGE Art Show!
- Why Art?
- Pre-Order Your Conference Merchandise!
- Conference Sessions Agenda Now Available
- Conference Family Checklist
- Upcoming Events
May 2025
Articles Include:
- The 6th Annual Walk and Roll for CHARGE is May 17th
- CHARGEon4Tucker’s Bowling Fundraiser
- Ask the Expert – Preparing for School Break
- Webinar: Thoughts on Behavior in CHARGE
- Be Paired with Davenport Fellows at Conference
- Important Conference Reminders
- Conference Family Checklist
- Upcoming Events
April 2025
Articles Include:
- Make a Difference – Volunteer at Conference
- What to Expect at Conference
- CHARGE Award Nominations
- Limited Edition Conference Merchandise
- Walk and Roll in Every State – We’re Halfway There!
- Conference Family Checklist
- Upcoming Events
March 2025
Articles Include:
- Conference Registration is Now Open!
- The Conference Experience
- First-Ever CHARGE Syndrome Conference Art Show
- Sibling and Adults with CHARGE Panelists
- New Family Liaisons
- 6th Annual Walk and Roll for CHARGE
- Crocker Barker CHARGE Sibling Scholarship
- Conference Family Checklist
- Upcoming Events
February 2025
Articles Include:
- 6th Annual Walk and Roll for CHARGE
- Share Your Story for Rare Disease Day
- New Parent-to-Parent Support Meetings
- Conference Sponsorships Available
- We Need Your Help! (Auction Items for Conference)
- Call for Conference Panelists
- Conference Family Checklist
- Upcoming Events
January 2025
Articles Include:
- Looking Forward to 2025
- Volunteer at Conference
- Become a Conference Sponsor
- Research Opportunities at Conference
- Sandra Davenport Fellowship
- New Vice President of the Board –Penni Echols
- Sweets for CHARGE
- Upcoming Events
For newsletters from 2004-2025, please email [email protected] [/expand]
