Home > For Families > Resources > CHARGE Accounts

CHARGE Accounts

CHARGE Accounts Newsletters
A quarterly newsletter published by the CHARGE Syndrome Foundation primarily for parents of children with CHARGE syndrome. Information should also be helpful to medical and educational professionals working with individuals who have CHARGE. Included with Foundation membership.



Newsletter Archive

CHARGE Accounts Newsletter Submission Guidelines


Summer 2020

Articles Include:

  • President’s Message
  • Back to School? More Questions Than Answers.
  • Remote Learning Resources
  • Accessible Story Time!
  • What’s Something Surprising That You Learned About Your Child or Your Family During This Pandemic?
  • Family Assistance Program Update
  • A Day To Remember
  • Focus On Fundraising
  • New Masks In Our Awareness Store

Winter 2020 (PDF, 1.1 MB)

Articles Include:

  • President’s Message
  • Carson Rocks Rare Disease Day
  • CHARGE Syndrome in the News: What Do I Say?
  • Everyone Deserves a Chance to Play
  • David Brown Educates in AZ and SC
  • Michigan Family Gathering
  • Focus on Fundraising
  • Fellows Reflections from the 2019 Conference
  • Understanding CHARGE Syndrome: Free Online Course

Fall 2019 (PDF, 1.1 MB)

Articles Include:

  • President’s Message
  • Deep in the Heart of CHARGE
  • The Third Class of Sandra Davenport CHARGE Syndrome Fellows
  • CHARGE Conference Research – Past, Present and Future
  • Make an Impact. Make a Difference.
  • Focus on Fundraising
  • October is National Disability Employment Awareness Month
  • iCanConnect

Winter 2019 (PDF, 2 MB)
Articles Include:

  • President’s Message
  • Conference Information & Important Deadlines
  • What You Need to Know Before Your Child Turns 18
  • What About Adults?
  • Emmet’s Run for CHARGE
  • Dymonte Thomas of the Denver Broncos
  • Good Friends Co-Op CHARGE Syndrome Fair & Fundraiser
  • Fellows Reflections from the 2017 Conference


Fall 2018 (PDF, 21 MB)
Articles Include:

  • President’s Message
  • A CHARGE Conference is a Life-Changing Experience!
  • A Day to Remember
  • CHARGE Foundation State Family Liaison Project
  • North Carolina Family Hosts Summer Lake Party
  • Jonas’ Cookery School
  • A Hidden Bowel Defect
  • CHARGE Doesn’t Stop Us From Traveling
  • Fellows Reflections from the 2017 Conference

Summer 2018 (PDF, 27.54 MB)
Articles Include:

  • President’s Message
  • CHARGE Syndrome Foundation 25th Anniversary
  • Conference Connections
  • EWRAP Awards
  • Fellows Reflections
  • College and Beyond!
  • A Leap of Faith
  • Creativity Corner
  • Focus on Fundraising

Spring 2018 (PDF, 11.28 MB)
Articles Include:

  • President’s Message
  • Facebook Top Topics
  • FAQs & Some Answers
  • To the Naysayers
  • This Kid Goes to College!
  • New Faces on the Executive Committee
  • Fellows: Reflections from the 2017 Conference
  • Awards & Honors
  • Creativity Corner with Meri Dwyer
  • Planning Ahead

 Winter 2018 (PDF, 3 MB)
Articles Include:

  • Director of Outreach Update & Intervener Webinar Series
  • Remembering Dr. Jan van Dijk
  • KeepOns for Glasses
  • Wanted: Committee Members
  • Focus On Fundraising
  • Announcements
  • Fellows: Reflections from the 2017 Conference
  • Creativity Corner with Meri Dwyer
  • Strategies & Equipment to Assist Movement


Fall 2017 (PDF, 5.25 MB)
Articles Include:

  • A New Friendship
  • Conference Highlights
  • 2017 Davenport CHARGE Syndrome Fellows
  • Focus on Fundraising
  • Enhancing Movement Opportunities in Your Home
  • Research Update

Spring 2017 (PDF,1.90 MB)
Articles Include:

  • Conference Prep & Insight
  • Davenport CHARGE Fellows Announced
  • EWRAP Recipients
  • Appropriate Physical Education Service in Schools: Laws and Knowledge
  • Focus on Fundraising

Winter 2017 (PDF, 3.95 MB)
Articles Include:

  • Conference Information
  • The Importance of Movement for Individuals with CHARGE syndrome
  • Diego’s Superhero Adventure
  • Oh, Booger!
  • 3rd Annual Ethan Wolfe Recreational Assistance Program
  • Sandra Davenport Fellowship Program
  • Why It’s OK to Ask Me About My Child
  • Embracing the Different
  • Chromatin in Development & Disease



Fall 2016 (PDF, 2 MB) – Special Conference Issue
Articles Include:

  • Learning Together: Program
  • Being Together: Sessions & Schedule
  • Professional Day
  • Scholarships
  • Call for Presentations
  • Camp
  • The Hotel & Meals
  • Orlando Area
  • Registration
  • Conference Funding Guide


Summer 2016 (PDF, 2 MB)
Articles Include:

  • In Memory of Marion
  • Personal Passports
  • Davenport Fellows
  • Deaf-Blind Summit report
  • Family Leadership
  • Applying for Disability
  • Charge It for CHARGE

Spring 2016 (PDF, 1.24 MB)
Articles Include:

  • Communication Challenges
  • Parent Connections
  • Data Dispatch
  • Focus on Fundraising
  • Taking CHARGE!

Winter 2016 (PDF, 1.39MB)
Articles Include:

  • Insight into Adulthood
  • Davenport Fellows
  • Parent Liaisons
  • 2nd EWRAP Campaign

Fall 2015 (PDF, 3.6MB)
Articles Include:

  • Conference Recap
  • Research at Conference
  • First Ethan Wolfe Recreational Assistance Program Recipients
  • Eighth Annual Charge It for CHARGE

Spring 2015 (PDF, 1.21MB)
Articles Include:

  • Upcoming CHARGE research at conference
  • Honoring Kathy McNulty
  • Sandra Davenport CHARGE Syndrome Fellows Program
  • Siblings Advice
  • Power of Families as Communication Partners

Fall 2014 (PDF, 2.49MB)
Articles Include:

  • U of Michigan Honors Meg Hefner
  • Webinar Updates
  • Board Nominations
  • Stories from the CHARGE Community
Read More About CHARGE Accounts From 2004-2013

Summer/Fall 2013 (PDF, 9.47MB)
Articles Include:

  • 11th International CHARGE Syndrome Conference Recap
  • Accommodation Cards
  • Outreach Infomercial

Spring 2013 (PDF, 1.1MB)
Articles include:

  • Social Media: Is It Really Helpful? It’s How You Use It
  • Open Hands, Open Access: Deaf-Blind Intervener Learning Modules
  • The Diagnosis Is Not the Person

Winter 2012 (PDF, 2.2MB)
Articles include:

  • Sucessful Adult Outcomes for Students in Transition
  • Bedwetting Solution
  • I Can Connect! Technology Program

Fall 2012 (PDF, 2.8MB)
Articles include:

  • Social Skills: Social Skills & Video Modeling
  • Research Update
  • Conference Funding Guide

Summer 2012 (PDF, 2.27MB)
Articles include:

  • iPads and the Itinerant
  • Conversations and Creativity (original writings by individuals with CHARGE)
  • Save the Date: 11th International CHARGE Syndrome Conference (Scottsdale, AZ)

Spring 2012 (PDF, 4.3MB)
Articles include:

  • So Many Ways to Have a Conversation– Full article on communication by Martha Majors from the Spring 2012 edition of CHARGE Accounts
  • Introducing CHARGE to the Classroom
  • Many Ways to Have a Conversation
  • New Screening Method for CHD7

Winter 2011 (PDF, 1.47MB)
Articles include:

  • Potty Training from a Parent’s Perspective
  • CHARGE Clinics and Seminars
  • Texas Chargers—6th Annual Retreat

Summer/Fall 2011 (PDF, 1.75MB)
Recap of 10th International CHARGE Syndrome Conference (Orlando, FL)

Spring 2011 (PDF, 751K)
Articles include:

  • Taking CHARGE of Communication
  • Going Back to Work: Sharing Our Experiences

Winter 2010 (PDF, 1.07 MB)
Articles include:

  • CHARGE Foundation Quotes 2010
  • Learning About CHARGE from Flies
  • Families’ Perceptions of Disability-Related Supports and Services: Report of a National Survey of Families Who Have
  • Children with Deafblindness

Fall 2010 (PDF, 1.03 MB)
Articles include:

  • Surviving CHARGE Syndrome as a Person Who Has CHARGE
  • Using Augmented Input Intervention Strategies
  • Survival Strategies: Six Tips
  • The MAPs Planning Process

Summer 2010 (PDF, 1.0 MB)
Articles include:

  • Family Planning special issue

Spring 2010 (PDF, 1.04MB)
Accessible, text-only version (76K)
Articles include:

  • Addressing Social Challenges of Students with CHARGE Syndrome in Middle School
  • Supporting Young Adults with CHARGE Syndrome Toward Successful Transition to Adult Life
  • Strategies for Supporting Multi-Modal Communication

Winter 2009 (PDF, 1.09MB)
Articles include:

  • Focus on Fundraising issue
  • Charge It for CHARGE: A Step-by-Step Guide
  • Websites for Parents of Children with CHARGE Syndrome

Summer/Fall 2009 (Double Issue: PDF, 2.9 MB)
Articles include:

  • Recap of 9th International CHARGE Syndrome Conference (Bloomingdale, IL)

Spring 2009 (PDF, 724K)
Articles include:

  • 3rd Annual CHARGE Retreat in Denton, TX
  • Topics from the CHARGE Listserv
  • Information on 9th International CHARGE Syndrome Conference (Bloomingdale, IL)

Winter 2008 (PDF, 547K)
Articles include:

  • People First Language
  • Finding Funds to Attend Conference

Fall 2008 (PDF, 670K)
Articles include:

  • Recap of Tennessee CHARGE Syndrome/Deafblind Weekend
  • Websites to Help with Holiday Shopping

Summer 2008 (PDF, 1270K)
Articles include:

  • Marion is 75, CHARGE Syndrome Foundation is 15
  • CHARGE Syndrome Foundation: Major Milestones
  • Tribute to Marion Norbury

Spring 2008 (PDF, 359K)
Articles include:

  • Personal Account: VitalStim Therapy
  • New at the Website: CHARGE Syndrome Professional Packet

Fall 2007 (PDF, 546K)
Articles included:

  • Recap of 8th International CHARGE Syndrome Conference (Costa Mesa, CA)

Summer 2007 (PDF, 171K)
Articles include:

  • Travel by Air
  • Chronic Pain in CHARGE

Spring 2007 (PDF, 131K)
Articles include:

  • Special Account: Pain issue
  • Fundraiser in a Box

Winter 2006 (PDF, 1.0 MB)
Articles include:

  • Independence Day: Our Story
  • Collaboration Between the CHARGE Syndrome Foundation and Other Organizations

Fall 2006 (PDF, 620 K)
Articles include:

  • International Account: News from Germany
  • Strategies for Successful Medical/Dental Appointments for Individuals Who Are Deaf-Blind

Summer 2006 (PDF, 604 K)
Articles include:

  • Adele’s Cochlear Implant Journey
  • Report on the Adult Services Committee

Spring 2006 (PDF, 1.1 MB)
Articles include:

  • Personal Accounts: Joel Saruski, Aaron Sorkin, Andrew–His 36 Hours, Laura Kenley
  • Intervention in Kentucky

Winter 2005 (PDF, 3.9 MB)
Articles include:

  • CHARGE Syndrome Fundraiser: Texas Style
  • Botox Use in CHARGE Syndrome Prevents Tracheotomy

Fall 2005 (PDF, 560 K)
Articles include:

  • Personal Account: Then and Now
  • Recap of 7th International CHARGE Syndrome Conference (Miami, FL)

Summer 2005 (PDF, 284 K)
Articles include:

  • A Review of Research Projects
  • Educational and Behavioral Implications of Missing Balance Sense in CHARGE Syndrome

Spring 2005 (PDF, 550 K)
Articles include:

  • DNA Testing for CHARGE Syndrome
  • Memorial Gifts Create Lasting Tribute to Central Michigan University Student

Fall 2004 (PDF, 688 K)
Articles include:

  • A CHARGE Gene Discovered
  • Suggestions for Creating Successful Transitions from School to Adulthood