A better world for people with CHARGE syndrome.

The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE syndrome through outreach, education and research.

CHARGE and Me by Aman

Aman with his intervenor Brenda

Aman Mehta is 15 years old and lives in Michigan, Ontario. Aman was born in Victoria, BC (Canada). He is an avid reader, loves video games, and any new technology or gadget. In fact, he has an unbeatable record in Mario Kart, his favorite game. He recently wrote about CHARGE Syndrome, through the eyes of Inspector Gadget, one of his favorite characters. Enjoy!

Read Aman’s CHARGE and Me Story

Profiles Archive


Meet Jay Brandrup and the Kinetic Team

Jay Brandrup

With the rollout of the new website, our first Foundation member focus will be on Jay Brandrup, whose Internet development company, Kinetic, is responsible for building the new website. Jay and his team have been sharing their expertise and skills with the Foundation shortly after Jay’s daughter, Adele, was born in 2004.

Read more about Jay and the Kinetic Team

Spotlight Archive