A better world for people with CHARGE syndrome.

The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE syndrome through outreach, education and research.

Boston or Bust!

Picture of three adults with CHARGE: Kristin and Ashley are seated, with Win standing behind them

Kristin is a young adult who has traveled extensively with her family, however,  she recently took her first solo flight and trip to see her two good friends graduate from Perkins in Boston, Massachusetts.

Read more about Kristin’s First Solo Flight

Profiles Archive


Meet Jay Brandrup and the Kinetic Team

Jay Brandrup

With the rollout of the new website, our first Foundation member focus will be on Jay Brandrup, whose Internet development company, Kinetic, is responsible for building the new website. Jay and his team have been sharing their expertise and skills with the Foundation shortly after Jay’s daughter, Adele, was born in 2004.

Read more about Jay and the Kinetic Team

Spotlight Archive