A better world for people with CHARGE syndrome.

The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE syndrome through outreach, education and research.

Profiles in CHARGE

Rafael Garrigos has been creating art since around 1994. “My expressiveness goes back and forth between the visual arts and creative writing,” he says. “The feeling of accomplishing something and looking back on my progress inspired me to get back into what I love to do (writing and drawing).

“I have CHARGE, but it is not the end of the story because I march to the beat of my own drum,” Rafael says. “In a world full of possibilities, your imagination is your own limit.”

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“We travel quite frequently from North Carolina to Cincinnati, Ohio, for Rhett’s medical care. Between gas, food, and lodging, traveling can become very expensive. Our family is so thankful for the Family Medical Travel Assistance grant through the CHARGE Syndrome Foundation. ”

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