A better world for people with CHARGE syndrome.

The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE syndrome through outreach, education and research.

Matthew and Brian: Unstoppable!

Two brothers Matthew and Brian are pictured today and as young children

Matthew and Brian are twenty-year-old twins and both have CHARGE syndrome.  Like many families, their parents Jay and Emily were informed early on about all of the things the boys would struggle with because of their diagnosis.  In this profile, Emily shares about their lives and how they have become unstoppable!

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Profiles Archive


Volunteer Spotlight: Aubrey Williams

Aubrey Williams Senior Picture

This volunteer spotlight features Aubrey Williams, who has been fundraising for the Foundation, speaking at conferences, planning gatherings, and more!  In this article, this truly great ambassador for the Foundation shares her story on how her challenges have led to finding her calling.

Read more about Aubrey

Spotlight Archive