A better world for people with CHARGE syndrome.

The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE syndrome through outreach, education and research.

The Shikoras: Taking CHARGE in Orlando

The Shikora Family

It took them 12 years, but the Shikoras made it to the 13th International CHARGE Syndrome Conference this summer, where they had a phenomenal experience.  Mom Melissa shares her thoughts on their family’s first trek to an International CHARGE Syndrome Conference and what it meant to them.

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Profiles Archive


Volunteer Spotlight: Aubrey Williams

Aubrey Williams Senior Picture

This volunteer spotlight features Aubrey Williams, who has been fundraising for the Foundation, speaking at conferences, planning gatherings, and more!  In this article, this truly great ambassador for the Foundation shares her story on how her challenges have led to finding her calling.

Read more about Aubrey

Spotlight Archive