A better world for people with CHARGE syndrome.

The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE syndrome through outreach, education and research.

Profiles in CHARGE

Get to know our CHARGE community and read inspiring stories of overcoming feeding challenges to stories honoring caregivers. Meet individuals with CHARGE and share in the stories of their hobbies and hopes. Welcome to Profiles in CHARGE.

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Volunteer Spotlight: Meet the Winners

Stars-In-CHARGE Recognition Award 2021 - Institute on Movement Studies for Individuals with Visual Impairment or Deafblindness

The Institute on Movement Studies for Individuals with Visual Impairment or Deafblindness (IMSVI) has a long history of supporting the CHARGE community through programming, parental support and training, research, and education related to motor development, physical activity, and sports and recreation for children and youth with CHARGE Syndrome.

Co-director Lauren Liberman, Ph.D., has devoted her professional career to teaching others about the importance of movement for those with vision and deafblindness. Many of her students have become colleagues, collaborators, and teachers themselves, all working to improve the opportunities for children and young adults through accessible recreation programs and by helping others understand the importance of movement.

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