A better world for people with CHARGE syndrome.

The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE syndrome through outreach, education and research.

Jonas’ Cookery School

Jonas has a plan: To get rid of the tracheotomy at 16, to have a beard at 17, to drive a car at 18, and to live alone at 20. His big goal of living alone at the age of 20 gives him all the motivation he needs to learn how to cook. Read his mom’s diary of Jonas’ first cooking lessons.


Read more about Jonas’ Cookery School

Profiles Archive


Volunteer Spotlight: Meet the State Liaisons

The State Parent Liaisons promote connections among the CHARGE families in their state, share the latest CHARGE resources with the State Deaf-Blind Projects and families, and inform the Foundation about available state resources. If your state is not currently serviced by a parent liaison and you are interested in learning more, please email Minnie Lambert at minnie@chargesyndrome.org.

Read more about the State Liaisons

Spotlight Archive