A better world for people with CHARGE syndrome.

The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE syndrome through outreach, education and research.

Deaf-Blind Awareness Week 2020

Of all the obstacles people who are deaf-blind overcome, misconceptions don’t have to be one of them.

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Profiles Archive


Volunteer Spotlight: Meet Diana Lenis

In 2013 I was at a point in my life in which I felt I was stable enough to offer help to others in need and I was eager to find volunteer opportunities. My search for volunteering opportunities in the community lead me to The CHARGE Syndrome Foundation.


Read more about Diana Lenis

Spotlight Archive