A better world for people with CHARGE syndrome.

The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE syndrome through outreach, education and research.

Sing Me A Story By Ben Smith

Ben is an amazing 5 year old boy with CHARGE syndrome. He loves music, books, and his family. The Smith family introduced the Foundation to the Sing Me A Story Foundation, “SMAS.” Their mission is to bring the voices of children in need to the world – through music. SMAS took a book created by Ben and turned it into a fantastic song. 

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Profiles Archive


Volunteer Spotlight: Meet Diana Lenis

In 2013 I was at a point in my life in which I felt I was stable enough to offer help to others in need and I was eager to find volunteer opportunities. My search for volunteering opportunities in the community lead me to The CHARGE Syndrome Foundation.



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Spotlight Archive