A better world for people with CHARGE syndrome.

The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE syndrome through outreach, education and research.

Jonas’ Cookery School

Jonas has a plan: To get rid of the tracheotomy at 16, to have a beard at 17, to drive a car at 18, and to live alone at 20. His big goal of living alone at the age of 20 gives him all the motivation he needs to learn how to cook. Read his mom’s diary of Jonas’ first cooking lessons.


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Profiles Archive


Volunteer Spotlight: Meet Diana Lenis

In 2013 I was at a point in my life in which I felt I was stable enough to offer help to others in need and I was eager to find volunteer opportunities. My search for volunteering opportunities in the community lead me to The CHARGE Syndrome Foundation.



Read more about Diana Lenis

Spotlight Archive