A better world for people with CHARGE syndrome.

The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE syndrome through outreach, education and research.

Profiles in CHARGE

Get to know our CHARGE community and read inspiring stories of overcoming feeding challenges to stories honoring caregivers. Meet individuals with CHARGE and share in the stories of their hobbies and hopes. Welcome to Profiles in CHARGE.

Read Profiles in CHARGE

Profiles Archive


Program Spotlight

“We travel quite frequently from North Carolina to Cincinnati, Ohio, for Rhett’s medical care. Between gas, food, and lodging, traveling can become very expensive. Our family is so thankful for the Family Medical Travel Assistance grant through the CHARGE Syndrome Foundation. ”

Read Rhett’s Story