A better world for people with CHARGE syndrome.

The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE syndrome through outreach, education and research.

Profiles in CHARGE

Get to know our CHARGE community and read inspiring stories of overcoming feeding challenges to stories honoring caregivers. Meet individuals with CHARGE and share in the stories of their hobbies and hopes. Welcome to Profiles in CHARGE.

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Profiles Archive


Volunteer Spotlight: Meet the Winners

Stars-In-CHARGE Recognition Award 2021 - Laurie Suter

Laurie Suter, whose daughter Lacey has CHARGE Syndrome, has been one of the Foundation’s biggest cheerleaders for many years.

“Lacey inspires me! She is my hero,” Laurie says. “She has been through a lot in her life but she still smiles. She brings so much joy in our lives and because of her, I feel I need to give back and volunteer for the Foundation and help be a support to other families. I am glad that I can volunteer as a parent liaison for the Foundation.”

Laurie was awarded with the CHARGE Recognition Award during our 2021 The Show Must CHARGE ONline Symposium.

Read more about Laurie Suter

Spotlight Archive