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About the Foundation

The CHARGE Syndrome Foundation, Inc. is a 501(c)(3) charitable organization that is governed by a Board of volunteers composed of up to 12 members. The primary goals of the Foundation include: growing our outreach and support programs; increasing our knowledge base; promoting awareness; building networks and partnerships; and investing in leading-edge research.

Interested in becoming involved? There are many ways to get involved and support the work of the Foundation.

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