A better world for people with CHARGE syndrome.

The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE syndrome through outreach, education and research.

Profiles in CHARGE

Get to know our CHARGE community and read inspiring stories of overcoming feeding challenges to stories honoring caregivers. Meet individuals with CHARGE and share in the stories of their hobbies and hopes. Welcome to Profiles in CHARGE.

Read Profiles in CHARGE

Profiles Archive


Sibling Spotlight

Recently, Katie, 14, was assigned a project for health class to write about something that has affected their family.  She chose to write about CHARGE syndrome and her twin sister, Sarah.

Read more about Sarah, Katie and their Family