If you are an educator or therapist with a student/client with CHARGE syndrome, this information is for you. This packet was developed to provide a brief introduction to the complex world of CHARGE and some strategies to consider in education and therapeutic settings. Read the ASHA Leader reprint for an overview of genetics, clinical diagnosis, ears and hearing, feeding, behavior and education and David Brown’s article on Behavior in CHARGE. After that, pick and choose sections that apply more directly to your area(s). The full packet can be downloaded with the link at the bottom of the page.
ASHA Leader Review Article of CHARGE Syndrome by James Thelin and Lori Swanson (Editors)
Behavior in CHARGE by David Brown
Welcoming the Child in the Classroom by Laurie Denno
Origins of Behavior by Martha Majors & Pam Ryan
Physical Needs by Maryann Girardi
Occupational Therapy by Anna Shinkfield
Speech and Language Therapy by Lisa Anne Guerra
Technical Assistance by Betsy McGinnity
Technical Assistance by Donna Bent
Oral Motor and Feeding by Anna Shinkfield and Lisa Anne Guerra
Educational Needs by Martha Majors and Sharon Stelzer
Resources for Teachers by Betsy McGinnity
