The CHARGE Syndrome Foundation has many ways to offer support and resources to parents, professionals, and people with CHARGE syndrome. Our local, national, and international partners provide an array of services to help the CHARGE syndrome community.
The CHARGE Syndrome Foundation, along with our partners, can assist with finding services and programs such as: new parent support and education, family meetings, sibling and grandparent support, regional and national conferences, partnerships with CHARGE Syndrome Clinics, training for medical professionals and educators, and advocacy. You can start here.
New parents can find out more here.
Get direct support from our Director of Outreach, Sheri Stanger. She can answer your questions and direct you to available resources in your area, including parent contact lists for local families and a list of professionals familiar with CHARGE in your area. Call
1-855-524-2743 (toll free USA and Canada) or email sheri@chargesyndrome.org.
Our CHARGE family has experienced the loss of far too many amazing individuals with CHARGE. Every life is precious, and we grieve together as a community. It is important for everyone to know that the loss of a child, grandchild, sibling, relative, or friend does not and should not signal the end of your relationship with the Foundation. You will always be part of our CHARGE family. Please click here to access resources, support groups, and ways everyone in our CHARGE family can help.
State Specific Resources
The State Family Liaison Project is a model of collaboration to improve the Foundation’s outreach to both families and professionals at the national level. The position will be used to build relationships, network, collaborate and disseminate information.
The primary function of a State Family Liaison is to:
- Share the latest CHARGE resources with the State Deaf-Blind Projects and the families
- Assist in helping both the Foundation and the State Projects in identifying families
- Update the Foundation on available state resources
- Promote connections among the CHARGE families in the state
Find your liaison: hover over your state on the map or check the list below the map. If your state is not currently serviced by a parent liaison and you are interested in learning more, please email Minnie Lambert at minnie@chargesyndrome.org.
State Family Liaisons:
Get to Know Your State Liaison. Click on the name below.
Casey Adams – AR cadams.afcs@gmail.com
Kimberly Lauger – AZ kim@kimberlylauger.com
Patricia Barr – CA Amazing.abby4@yahoo.com
Victoria Criswell – CA billvictoria@sbcglobal.net
Betsy Marsolan – CA elizabeth.marsolan@gmail.com
Erin Nokes – Northern CA erin.nokes@gmail.com
Maureen Robinette – DE marobinette@gmail.com
Katrina Michel – FL katrinafloridacharge@gmail.com
Donia Shirley-Douglas – FL doniagshirley@gmail.com
Michelle Milder – GA michellemilder17@gmail.com
Thornton and Ana Gallimore – IL/Military Gallimore.CHARGE@gmail.com
Samantha Teed – IA sammyteed@hotmail.com
Kimberly Freeman – KS kansaschargeliaison@gmail.com
Ricky Teed – IA richardteed@hotmail.com
Sarah Cawthon – KY cawthonmd@yahoo.com
Jill Barthe – LA jillehannan@gmail.com
Fran Hannan (Grandparent) – LA franhannanslp@gmail.com
Sarah & David Irving – ME seirving@northernlight.org davidshelterwoodmaine@gmail.com
Jodie Beavers – MI jbeavers@shepherdschools.net
Judy Cavazos – Beal – MN judy.cavazos@gmail.com
Kate Smith – MO katepribyl@gmail.com
Maria Lindquist – NE marianecharge@gmail.com
Courtney Scholl – NE courtney.scholl@icloud.com
Penni Echols – NV penni.echols@gmail.com
Laurie Suter – NH lauries12@comcast.net
Julie Kelp Ferguson – NJ jekers@optonline.net
Suzanne Chen – NY suzanne.a.chen@gmail.com
Kim Lane – NC kimandmikelane@gmail.com
Gloria Bowles – OK gloriab89@yahoo.com
Sue Shaffer – PA shaffersms@gmail.com
Fernanda Diaz – RI Ferdiazfd@hotmail.com
Minnie Lambert – SC minnie@chargesyndrome.org
Kristin Knutson – SD kmknutson99@gmail.com
Kristi Jones – TN kristitncharge@gmail.com
Kathi Barksdale – TX kathi@centex.net
Anne Harvey – UT utahchargeliaison@gmail.com
Sondra Dean – VA Sondraincharge@gmail.com
Megan Garrison – WA megan.j.garrison@gmail.com
Scott Lynn – WA scottman2003@hotmail.com
Brooke Fula – WI brookefula@att.net
Judy Cavazos-Beal – Spanish Speaking judy.cavazos@gmail.com
Karin Dagley – Perkins School for the Blind karindagley@me.com
If interested in becoming your state’s liaison, please contact Minnie Lambert, minnie@chargesyndrome.org.
State and National Deafblind Projects – the state and national projects focused on deafblindness support efforts to train teachers about the unique needs of students who are deafblind. Technical assistance from both state and national Deafblind Projects are the primary way for local districts to get the training and support needed to effectively educate our children.
Connect with us on social media:
