The CHARGE Syndrome Foundation has many ways to offer support and resources to parents, professionals, and people with CHARGE syndrome. Our local, national, and international partners provide an array of services to help the CHARGE syndrome community.
The CHARGE Syndrome Foundation, along with our partners, can assist with finding services and programs such as: new parent support and education, family meetings, sibling and grandparent support, regional and national conferences, partnerships with CHARGE Syndrome Clinics, training for medical professionals and educators, and advocacy. You can start here.
New parents can find out more here.
Get direct support from a member of our team who can answer your questions and direct you to available resources in your area, including parent contact lists for local families and a list of professionals familiar with CHARGE. Email info@chargesyndrome.org.
Our CHARGE family has experienced the loss of far too many amazing individuals with CHARGE. Every life is precious, and we grieve together as a community. It is important for everyone to know that the loss of a child, grandchild, sibling, relative, or friend does not and should not signal the end of your relationship with the Foundation. You will always be part of our CHARGE family. Please click here to access resources, support groups, and ways everyone in our CHARGE family can help.
Emergency Financial Resources
A list of Organizations that help with emergency relief for families.
State Specific Resources
The State Family Liaison Project is a model of collaboration to improve the Foundation’s outreach to both families and professionals at the national level. The position will be used to build relationships, network, collaborate and disseminate information.
The primary function of a State Family Liaison is to:
- Share the latest CHARGE resources with the State Deaf-Blind Projects and the families
- Assist in helping both the Foundation and the State Projects in identifying families
- Update the Foundation on available state resources
- Promote connections among the CHARGE families in the state
Find your liaison: hover over your state on the map or check the list below the map. If your state is not currently serviced by a parent liaison and you are interested in learning more, please email Minnie Lambert at minnie@chargesyndrome.org.
State Family Liaisons:
Get to Know Your State Liaison. Click on the name below to read their profile.
ALABAMA
Matthew Jones – mdjhuntsville@gmail.com
Victoria Wilkins – vmwilki@yahoo.com
ARIZONA
Kimberly Lauger – kim@kimberlylauger.com
ARKANSAS
Casey Adams – cadams.afcs@gmail.com
CALIFORNIA
Patricia Barr – Amazing.abby4@yahoo.com
Victoria Criswell – victoria@criswell5.com
Betsy Marsolan – elizabeth.marsolan@gmail.com
COLORADO
Stephanie Schmitz – chargecolorado@gmail.com
CONNECTICUT
Ben Daigle – bdctus at gmail dot com
FLORIDA
Katrina Michel – katrinafloridacharge@gmail.com
Donia Shirley-Douglas – doniagshirley@gmail.com
GEORGIA
Michelle Milder – michellemilder17@gmail.com
INDIANA
Kim Kazmirski – brokeydale@gmail.com
IOWA
Ricky Teed – richardteed@hotmail.com
Samantha Teed – sammyteed@hotmail.com
KANSAS
Kimberly Freeman – kansaschargeliaison@gmail.com
KENTUCKY
Sarah Cawthon – cawthonmd@yahoo.com
LOUISIANA
Jill Barthe – jillehannan@gmail.com
Fran Hannan (Grandparent) – franhannanslp@gmail.com
MAINE
Sarah & David Irving – seirving@northernlight.org; davidshelterwoodmaine@gmail.com
MICHIGAN
Jodie Beavers – jbeavers@shepherdschools.net
MINNESOTA
Judy Cavazos – Beal – judy.cavazos@gmail.com
Chelsea Winchester – winchester2011.cw@gmail.com
MISSOURI
Kate Smith – katepribyl@gmail.com
NEBRASKA
Maria Lindquist – marianecharge@gmail.com
Courtney Scholl – courtney.scholl@icloud.com
NEVADA
Penni Echols – penni.echols@gmail.com
Nevada Facebook Group
NEW HAMPSHIRE
Laurie Suter – lauries12@comcast.net
NEW JERSEY
Kristine Gargiulo – finncrewco@gmail.com
Heather Hilbmann – heathernjcharge@gmail.com
NEW YORK
Suzanne Chen – suzanne.a.chen@gmail.com
NORTH CAROLINA
Kim Lane – kimandmikelane@gmail.com
OHIO
Jenn Kile – jennykile@yahoo.com
Katie Susil – katiesusil@yahoo.com
OKLAHOMA
Gloria Bowles – gloriab89@yahoo.com
OREGON
Megan Garrison – megan.j.garrison@gmail.com
SOUTH CAROLINA
Minnie Lambert – minnie@chargesyndrome.org
SOUTH DAKOTA
Kristin Knutson – kmknutson99@gmail.com
TENNESSEE
Kristi Jones – kristitncharge@gmail.com
TEXAS
Kathi Barksdale – kathi@centex.net
UTAH
Anne Harvey – utahchargeliaison@gmail.com
VIRGINIA
Sondra Dean – Sondraincharge@gmail.com; sondra.dean@lee.k12.va.us
WASHINGTON
Megan Garrison – megan.j.garrison@gmail.com
Scott Lynn – scottmen2003@hotmail.com
WEST VIRGINIA
Jenny Forren – West Virginia jmforren@gmail.com
WISCONSIN
Brooke Fula – Wisconsin brookefula@att.net
SPANISH SPEAKING
Judy Cavazos-Beal – judy.cavazos@gmail.com
If interested in becoming your state’s liaison, please contact Minnie Lambert, minnie@chargesyndrome.org.
State and National Deafblind Projects – the state and national projects focused on deafblindness support efforts to train teachers about the unique needs of students who are deafblind. Technical assistance from both state and national Deafblind Projects are the primary way for local districts to get the training and support needed to effectively educate our children.
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