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Get Support

The CHARGE Syndrome Foundation has many ways to offer support and resources to parents, professionals, and people with CHARGE syndrome. Our local, national, and international partners provide an array of services to help the CHARGE syndrome community.

The CHARGE Syndrome Foundation, along with our partners, can assist with finding services and programs such as: new parent support and education, family meetings, sibling and grandparent support, regional and national conferences, partnerships with CHARGE Syndrome Clinics, training for medical professionals and educators, and advocacy.  You can start here.

New parents can find out more here.



Get direct support from a member of our team who can answer your questions and direct you to available resources in your area, including parent contact lists for local families and a list of professionals familiar with CHARGE. Email info@chargesyndrome.org.


Our CHARGE family has experienced the loss of far too many amazing individuals with CHARGE. Every life is precious, and we grieve together as a community. It is important for everyone to know that the loss of a child, grandchild, sibling, relative, or friend does not and should not signal the end of your relationship with the Foundation. You will always be part of our CHARGE family. Please click here to access resources, support groups, and ways everyone in our CHARGE family can help.



Emergency Financial Resources

A list of Organizations that help with emergency relief for families.

State Specific Resources

The State Family Liaison Project is a model of collaboration to improve the Foundation’s outreach to both families and professionals at the national level.  The position will be used to build relationships, network, collaborate and disseminate information.

The primary function of a State Family Liaison is to:

  • Share the latest CHARGE resources with the State Deaf-Blind Projects and the families
  • Assist in helping both the Foundation and the State Projects in identifying families
  • Update the Foundation on available state resources
  • Promote connections among the CHARGE families in the state

Find your liaison: hover over your state on the map or check the list below the map.  If your state is not currently serviced by a parent liaison and you are interested in learning more, please email Minnie Lambert at minnie@chargesyndrome.org.

State Family Liaisons:

Get to Know Your State Liaison. Click on the name below.

Kimberly Lauger – Arizona kim@kimberlylauger.com

Casey Adams – Arkansas cadams.afcs@gmail.com

Patricia Barr – California Amazing.abby4@yahoo.com

Victoria Criswell – California victoria@criswell5.com

Betsy Marsolan – California elizabeth.marsolan@gmail.com

Erin Nokes – Northern California erin.nokes@gmail.com

Stephanie Schmitz – Colorado chargecolorado@gmail.com

Ben Daigle – Connecticut bdctus@gmail.com

Katrina Michel – Florida katrinafloridacharge@gmail.com 

Donia Shirley-Douglas – Florida doniagshirley@gmail.com

Michelle Milder – Georgia michellemilder17@gmail.com

Katherine Donnelly – Illinois Katherine_donnelly@yahoo.com

Kim Kazmirski – Indiana brokeydale@gmail.com

Ricky Teed – Iowa richardteed@hotmail.com

Samantha Teed – Iowa sammyteed@hotmail.com

Kimberly Freeman – Kansas kansaschargeliaison@gmail.com

Sarah Cawthon – Kentucky  cawthonmd@yahoo.com

Jill Barthe – Louisiana jillehannan@gmail.com

Fran Hannan (Grandparent) – Louisiana franhannanslp@gmail.com

Sarah & David Irving – Maine seirving@northernlight.org; davidshelterwoodmaine@gmail.com

Jodie Beavers – Michigan jbeavers@shepherdschools.net

Judy Cavazos – Beal – Minnesota  judy.cavazos@gmail.com

Chelsea Winchester – Minnesota winchester2011.cw@gmail.com

Kate Smith – Missouri  katepribyl@gmail.com

Maria Lindquist – Nebraska marianecharge@gmail.com

Courtney Scholl – Nebraska courtney.scholl@icloud.com

Penni Echols – Nevada penni.echols@gmail.com; Nevada Facebook Group

Laurie Suter – New Hampshire  lauries12@comcast.net

Kristine Gargiulo – New Jersey finncrewco@gmail.com

Heather Hilbmann – New Jersey heathernjcharge@gmail.com 

Suzanne Chen – New York suzanne.a.chen@gmail.com

Kim Lane – North Carolina kimandmikelane@gmail.com

Jenn Kile – Ohio jennykile@yahoo.com

Katie Susil – Ohio katiesusil@yahoo.com

Gloria Bowles – Oklahoma gloriab89@yahoo.com

Megan Garrison – Oregon megan.j.garrison@gmail.com

Minnie Lambert – South Carolina  minnie@chargesyndrome.org

Kristin Knutson – South Dakota kmknutson99@gmail.com

Kristi Jones – Tennessee kristitncharge@gmail.com

Kathi Barksdale – Texas  kathi@centex.net

Anne Harvey – Utah utahchargeliaison@gmail.com

Sondra Dean – Virginia Sondraincharge@gmail.com; sondra.dean@lee.k12.va.us

Megan Garrison – Washington megan.j.garrison@gmail.com

Scott Lynn – Washington scottmen2003@hotmail.com

Jenny Forren – West Virginia jmforren@gmail.com

Brooke Fula – Wisconsin brookefula@att.net

Thornton and Ana Gallimore – Military Gallimore.CHARGE@gmail.com

Judy Cavazos-Beal – Spanish Speaking judy.cavazos@gmail.com

If interested in becoming your state’s liaison, please contact Minnie Lambert, minnie@chargesyndrome.org

Find your state Deafblind Project


State and National Deafblind Projects – the state and national projects focused on deafblindness support efforts to train teachers about the unique needs of students who are deafblind. Technical assistance from both state and national Deafblind Projects are the primary way for local districts to get the training and support needed to effectively educate our children.


 deafblind organizations         family support groups        International groups      other helpful sites

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