Home > For Families > Get Support > Rare Disease Day

Rare Disease Day

The last day of February is World Rare Disease Day, an annual event that gives us the chance to come together, show our stripes, and raise awareness for more than 300 million people affected by rare disease globally.

We use this day to help raise awareness for the CHARGE community, and all of those individuals affected by rare diseases – including the unique challenges we face every day.


The zebra is the official symbol of rare diseases in the United States. Every stripe has a story…

  1. Share your story with us! Fill out this form and send a photo to have your story featured on our Facebook page.
  2. Show your stripes on social media by using #ShowYourStripesForCHARGE
  3. Share the link to the Rare Disease Day website on your social media
  4. Change your profile picture to our CHARGE Awareness graphic
  5. Print and have your child color the rare disease zebra to show their stripes
  6. Start a Facebook Fundraiser in honor of the day


Read Carson's Story




Read Itay's Story



Photo of young girl with glasses holding a sign that says "Jesus Loves Me' between her parents.


Read Sami's Story




Read Tyler's Story



Photo of teenage girl in glasses wearing a shirt with a zebra on it that says Care About Rare - CHARGE syndrome.


Read Vivian's Story