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Our Impact


View our 2023 Impact Report to get an overview of some of our accomplishments and a look at our plans for the future.




90 percent pie chart


We remain committed to ensuring that the maximum amount of dollars received is spent directly on research, awareness, and programs to support families and individuals with CHARGE. We are proud to say that more than 90% of all funds received do just that!





The Foundation is approaching $12M invested in new biomedical research into the etiology, genetic and molecular mechanisms, and treatment of CHARGE syndrome, as well as new research into clinical and medical diagnosis and treatment of CHARGE syndrome since the inception of the Pilot Research Grant Program in 2012.