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Foundation Supported Research

The CHARGE Syndrome Foundation is dedicated to promoting high quality clinical and scientific research into the cause and treatment of CHARGE syndrome. We have come a long way over the past couple of years, but know there is way more to be done. 

CHARGE Syndrome Foundation Scientific Research Grant Program

Thanks to the generosity of our donors, over the years the Foundation has been able to fund high quality CHARGE syndrome-related research projects. Many of our grant recipients have published their research in prestigious journals. Our research grant recipients have gone on to receive over $11,500,000 from the NIH and other government agencies.

If you are a researcher or know anyone who would be interested in this opportunity, please see the below scientific research grant program details. Grants are available for up to $50,000 each.

The purpose of these grants is to promote:

  • New biomedical research into the etiology, genetic and molecular mechanisms and treatment of CHARGE syndrome

or

  • New research into clinical and medical diagnosis and treatment of CHARGE syndrome.

Both established and new investigators are encouraged to apply. Preference will be given to investigators who are new to CHARGE research and/or to new projects with clear potential to lead to future funding from other agencies. 

The grant application process is currently closed and will open again in Winter 2024. 

For additional information, please contact info@chargesyndrome.org

CHARGE Syndrome Foundation Clinical Research Grant Program

The CHARGE Syndrome Foundation, Inc. is pleased to announce the availability of clinical research grants of up to $25,000.  The purpose of these grants is to promote clinical research on the treatment, intervention, prevention, and support of individuals with medical, health, and behavioral issues, and their families.  Both established and new investigators are encouraged to apply.

Funding is for a 12 months of research. Preference will be given to projects that include investigators who are new to CHARGE research and to projects with clear potential to lead to future funding from other agencies.

Clinical Research Grant Application

APPLY NOW

Grants Are Due: On-Going Basis
Award Start Date: 30 Days After Notification

If you have any questions for the Foundation, please contact research@chargesyndrome.org.

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2023 Research Grant Summary

The CHARGE Syndrome Foundation research awards began in 2012 and have been providing annual support for research ever since.

The 2023 awardee was:

Title of Project:  The Impact of HOME Intervention Program on Motor Skill Competence in Children with CHARGE syndrome

Investigators: Melanie Perreault PhD, Associate Professor, SUNY Brockport, Pamela Beach PhD, Professor, SUNY Brockport, Lauren Lieberman PhD, Distinguished Service Professor, SUNY Brockport

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Previous Grant Recipients Archive