CHARGE Syndrome Awareness Day is celebrated internationally every August 8th. This marks the day the first paper on the discovery of the CHD7 gene was published by Professor Conny van Ravenswaaij-Arts (August 8, 2004). This day aims to raise awareness of the variability of CHARGE syndrome to help improve diagnosis and access to best practice interventions.
The theme for 2026 is CHARGE syndrome – How do you spell it? You can show the incredible variability of CHARGE syndrome around the world by spelling out the letters C-H-A-R-G-E using items that reflect your life, culture, or country.
Here are some examples:
- Use anything meaningful or fun – pens, socks, toy cars, local foods, traditional crafts, or everyday objects from home
- Use a landmark as your backdrop
- Include your national flag
- Show us something unique about the country where you live
Every photo becomes part of a global connection celebrating CHARGE families around the world.
Here are some ways that you can participate:
- Use the following hashtags when sharing your story on social media: #CHARGESyndromeAwarenessDay
- Follow the CHARGE Syndrome Awareness Day Facebook Page: CHARGE-Syndrome Awareness Day.
- Join the CHARGE Syndrome Awareness Facebook Group: CHARGE-Syndrome Awareness Day – International Group
- Show your support by wearing CHARGE syndrome apparel. Click here to shop our Awareness Store.
Join us on August 8th to raise awareness of CHARGE syndrome around the world!
