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Recreation

Individuals with CHARGE syndrome can participate in all aspects of life, including recreational and social activities.

Ethan Wolfe Recreational Assistance Program

The Ethan Wolfe Recreational Assistance Program (EWRAP) provides individuals with CHARGE syndrome the opportunity to participate in recreational activities.

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Walk and Roll For CHARGE

Join together with families and friends worldwide and help raise money with our annual Virtual Walk and Roll event each May.

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Recreational a young girl with charge holding her race bib celebrates her runOpportunities for Children and Adults with CHARGE syndrome – There are many recreational and social opportunities for people with CHARGE syndrome. To explore options in your area please consult with your child’s school, developmental disability service office, and special recreation departments.

Camp Abilities – Camp Abilities Brockport is a one-week educational sports camp for children and teens who are blind, visually impaired, and deafblind with the motto – Believe You Can Achieve! This web site has links to other Camp Abilities, Resource Guides and Training Materials.

 

Special Olympics  

Best Buddies  – The world’s largest organization dedicated to ending the social, physical, and economic isolation of the 200 million people with intellectual and developmental disabilities (IDD).

Hippotherapy: American Hippotherapy Association – The term hippotherapy refers to how occupational therapy, physical therapy, and speech-language pathology professionals use evidence-based practice and clinical reasoning in the purposeful manipulation of equine movement to engage sensory, neuromotor, and cognitive systems to achieve functional outcomes. In conjunction with the affordances of the equine environment and other treatment strategies, hippotherapy can be part of a patient’s integrated plan of care.

United State Association of Blind Athletes (USABA)  – USABA is a Colorado-based 501(c) (3) organization that provides life-enriching sports opportunities for every individual with a visual impairment.

Musica young girl with CHARGE plays a drum along with a partner Therapy – American Music Therapy Association

Art Therapy – American Art Therapy Association

 

Other Information & Opportunities

a boy with CHARGE demonstrates some karate moves

Webinar – Physical Education for Children Who Are DeafBlind  by Lauren J. Lieberman, PhD

Physical Activity, Including Physical Education, Sport, and Recreation For Children Who are DeafBlind  by Lauren J. Lieberman, PhD (Begins on page 12 of section IV)

Strategies for Involvement in Physical Education & Balance Activities for All
by Dr. Lauren Lieberman and Dr. Pamela Haibach – Presentation from the 2013 CHARGE Syndrome Conference (Begins on page 10)


Got Balance? Balance and Stability Activities for Children with CHARGE Syndrome
: This video from the 2017 CHARGE Syndrome Conference provides examples of activities that can be done to improve balance and stability in children who have CHARGE syndrome. By Lauren Lieberman, Ph.D, Pamela Haibach-Beach, Ph.D, Melanie Perreault, Ph.D, Aaron Wood, Jennifer Vanetten, Jenna Sherwood.

Expect Motor Excellence Motor Skills and Children with CHARGE Syndrome
By Lauren J. Lieberman Ph.D.
Co-Director of The Institute of Movement Studies for Individuals with Visual Impairments The College at Brockport, Director of Camp Abilities (www.campabilities.org)