Individuals with CHARGE syndrome can participate in all aspects of life, including recreational and social activities.
Ethan Wolfe Recreational Assistance Program
The Ethan Wolfe Recreational Assistance Program (EWRAP) provides individuals with CHARGE syndrome the opportunity to participate in recreational activities. This program is need-based and funded through a generous gift from the Wolfe family and friends. During Ethan Wolfe’s 12 years, his life was enriched by an adaptive bike, special recreational camps, swimming lessons, music class, and so much more. David & Jody Wolfe, together with the CHARGE Syndrome Foundation, wish to honor Ethan’s memory by providing other individuals with CHARGE with similar, fun activities and equipment. To learn more, click here.
Apply below (online application requires a Google account). Awards are made on a rolling basis.
Please send any questions to ewrap@chargesyndrome.org.
Watch the video below to learn more about the Ethan Wolfe Recreational Assistance Program and how it has given individuals with CHARGE the chance to play.
Testimonials
EWRAP Recipient Photos (click on any photo to enlarge)
Other Information & Opportunities
Webinar – Physical Education for Children Who Are DeafBlind by Lauren J. Lieberman, PhD
Physical Activity, Including Physical Education, Sport, and Recreation For Children Who are DeafBlind by Lauren J. Lieberman, PhD (Begins on page 12 of section IV)
Strategies for Involvement in Physical Education & Balance Activities for All
by Dr. Lauren Lieberman and Dr. Pamela Haibach – Presentation from the 2013 CHARGE Syndrome Conference (Begins on page 10)
Got Balance? Balance and Stability Activities for Children with CHARGE Syndrome: This video from the 2017 CHARGE Syndrome Conference provides examples of activities that can be done to improve balance and stability in children who have CHARGE syndrome. By Lauren Lieberman, Ph.D, Pamela Haibach-Beach, Ph.D, Melanie Perreault, Ph.D, Aaron Wood, Jennifer Vanetten, Jenna Sherwood.
Expect Motor Excellence Motor Skills and Children with CHARGE Syndrome
By Lauren J. Lieberman Ph.D.
Co-Director of The Institute of Movement Studies for Individuals with Visual Impairments The College at Brockport, Director of Camp Abilities (www.campabilities.org)
Recreational 
Opportunities for Children and Adults with CHARGE syndrome – There are many recreational and social opportunities for people with CHARGE syndrome. To explore options in your area please consult with your child’s school, developmental disability service office, and special recreation departments.
Camp Abilities – Camp Abilities Brockport is a one-week educational sports camp for children and teens who are blind, visually impaired, and deafblind with the motto – Believe You Can Achieve! This web site has links to other Camp Abilities, Resource Guides and Training Materials.
Best Buddies – The world’s largest organization dedicated to ending the social, physical, and economic isolation of the 200 million people with intellectual and developmental disabilities (IDD).
Hippotherapy: American Hippotherapy Association – The term hippotherapy refers to how occupational therapy, physical therapy, and speech-language pathology professionals use evidence-based practice and clinical reasoning in the purposeful manipulation of equine movement to engage sensory, neuromotor, and cognitive systems to achieve functional outcomes. In conjunction with the affordances of the equine environment and other treatment strategies, hippotherapy can be part of a patient’s integrated plan of care.
United State Association of Blind Athletes (USABA) – USABA is a Colorado-based 501(c) (3) organization that provides life-enriching sports opportunities for every individual with a visual impairment.
Music
Therapy – American Music Therapy Association
Art Therapy – American Art Therapy Association
Walk and Roll For CHARGE
Join together with families and friends worldwide and help raise money with our annual Virtual Walk and Roll event.
