CHARGE Syndrome Foundation Facebook Group
National Family Association for Deaf-Blind (NFADB) – This organization supports individuals who are deafblind and their families.
Texas CHARGERS – This is a group of Texas families, friends, and professionals who are dedicated to helping children and young adults who live with CHARGE syndrome.
National CHARGE tele-support group for parents/guardians of children with CHARGE syndrome. This weekly support group is offered at no cost to the participants. Contact Sheri Stanger, Director of Outreach, sheri@chargesyndrome.org
Spanish tele-support group – Contact Myrna Medina, Family Specialist, California Deafblind Services medinam66@sbcglobal.net
Palmetto CHARGERS – minnie@chargesyndrome.org
NY CHARGE Family Support Group – suzanne.a.chen@gmail.com
NYPADB (NY Parent Association for Deaf-Blindness)
Parents of Infants and Toddlers Facebook group
Sense is a UK charity supporting and campaigning for people who are deafblind and those with sensory impairments
CHARGE Syndrome Listserv – An email support list for individuals with CHARGE syndrome, their families, and professionals. Search the archives for answers to a wide variety of questions.
If you would like your group listed here, email info@chargesyndrome.org
