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Family Support Groups


CHARGE Syndrome Foundation Facebook Group

National Family Association for Deaf-Blind (NFADB) – This organization supports individuals who are deafblind and their families.

Texas CHARGERS – This is a group of Texas families, friends, and professionals who are dedicated to helping children and young adults who live with CHARGE syndrome.

National CHARGE tele-support group for parents/guardians of children with CHARGE syndrome. This weekly support group is offered at no cost to the participants. Contact Sheri Stanger, Director of Outreach, sheri@chargesyndrome.org

Spanish tele-support group – Contact Myrna Medina, Family Specialist, California Deafblind Services medinam66@sbcglobal.net

Palmetto CHARGERSminnie@chargesyndrome.org

Nevada Facebook Group

NY CHARGE Family Support Group suzanne.a.chen@gmail.com

NYPADB (NY Parent Association for Deaf-Blindness)

Parents of Infants and Toddlers Facebook group 

Sense is a UK charity supporting and campaigning for people who are deafblind and those with sensory impairments

CHARGE Syndrome Listserv – An email support list for individuals with CHARGE syndrome, their families, and professionals. Search the archives for answers to a wide variety of questions.

If you would like your group listed here, email info@chargesyndrome.org