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Other Deafblind Organizations

The links listed below are to help you in your search for more information regarding CHARGE syndrome. Please note that we do not control any of the information you may find on these sites.

National Center on Deaf-Blindness
National Center on Deaf-Blindness – NCDB works collaboratively with families, federal, state and local agencies to provide technical assistance, information and personnel training.
https://nationaldb.org/

CHARGE Syndrome Articles and Bibliography at NCDB
The National Consortium on Deaf-blindness maintains a CHARGE Syndrome section with a variety of articles and both medical and general bibliographies.
https://nationaldb.org/library

NFADB (National Family Association for Deaf Blind)
This organization supports individuals who are deafblind and their families.
http://www.nfadb.org/

Perkins School for the Blind
Perkins – located in Watertown, Massachusetts, the school provides services to students from birth to 22 years of age who have visual impairments or those who are deafblind.
http://www.perkins.org/

CDBS – California Deafblind Services
http://www.cadbs.org/

Deaf Blind resources from the UK
Web resources listing about deafblindness.
http://www.deafblind.co.uk/

Texas School for Blind and Visually Impaired
A special public school in the continuum of statewide placements for students who have a visual impairment. It is also a statewide resource to parents of these children and professionals who serve them. Students, ages 6 through 21, who are blind, deafblind, or visually impaired, including those with additional disabilities, are eligible for consideration for services at TSBVI.
http://www.tsbvi.edu/

Sense UK
UK-based charity that supports children and adults who are deafblind. Sense has created a comprehensive information pack about the many aspects of living with CHARGE syndrome, written by some of the leading specialists in the field, including pediatricians, teachers, psychologists and social workers.
https://www.sense.org.uk/

Minnesota DeafBlind Technical Assistance Project
http://www.dbproject.mn.org/chargesyndrome.html

Deafblind International
https://www.deafblindinternational.org