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Helpful Websites

CHARGE Lab at Central Michigan University
The CHARGE Lab at Central Michigan University undertakes a variety of research projects relating to CHARGE and behavior.

Bulldog CHARGE Syndrome Research Lab
Research and Awareness Lab for CHARGE Syndrome at Mississippi State University. Mission to improve the lives of individuals with CHARGE.

Cincinnati Children’s CHARGE Center
The CHARGE Center at Cincinnati Children’s is  a center designed to help families negotiate both the medical and developmental challenges associated with this condition. A nurse coordinator will work with you and a team of specialists will review your son or daughter’s records and work with your family on a plan of action.

Exceptional Parent Magazine
Exceptional Parent Magazine – Magazine designed for families who have a child with a disability.

Feeding Tube Awareness Foundation
Foundation providing support and information relating to tube-feeding.

Low Vision Gateway
Resources for vision loss, vision-impairment, blindness, low vision aids and low vision rehabilitation services.

Lighthouse Guild
Non-profit organization dedicated to preserving vision and to providing critically needed vision and rehabilitation services to help people of all ages overcome the challenges of vision loss.

National Joint Committee for the Communication Needs of Persons with Severe Disabilities
National Joint Committee for the Communication Needs of Persons with Severe Disabilities – The purpose of the NJC is to promote research, demonstration, and educational efforts, including both in-service and preservice, directed to helping persons with severe disabilities communicate effectively.

National Library Service for the Blind and Print Disabled
National Library Service (NLS) is a free braille and talking book library service for people with temporary or permanent low vision, blindness, or a physical disability that prevents them from reading or holding the printed page.

A project funded by Perkins that is dedicated to helping parents of young children with vision impairments as well as children with multiple disabilities.

May We Help
An organization based out of Cincinnati, Ohio that engineers and builds devices for people with disabilities to enhance their lives at no cost to them.

CheckRare is a rare disease and advocacy website for health care professionals, patients, and caregivers. They focus on rare diseases, new and emerging therapies, clinical trials, diagnostics, and the companies behind them.