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What to Expect

We hope you can join us as we get Back in CHARGE in Orlando! We will have a top notch program a with wide variety of speakers who are the leading experts in CHARGE syndrome.  The four general theme areas under which most sessions are organized include: behavior, education, adult issues, and medical.  There will be something for everyone!

General Sessions

We begin each day, in general session with everyone together in one large room.

Breakout Sessions

After general sessions, we have a short break and then the breakout sessions begin. (There are no breakouts on Sunday as the program closes at noon after general session.) The breakout sessions happen during the rest of the day.  Everyone will split up and go to whichever breakout session interests them.  There are multiple sessions happening at the same time.  The schedule and handouts will be available online prior to conference and will be helpful in terms of making decisions about which sessions you might want to attend.  Some families decide to “divide and conquer,” splitting up and going to different sessions when there is more than one session happening at the same time that the family would like to attend.

Information Central

During Information Central, you can browse posters and speak to the many wonderful professionals who are at the conference.  If you have questions, this is the time to find the professional who can help!

Professional Day

Professional Day is Thursday, July 20, 2023. Click here for more information for Professionals.

Camp

We are pleased to offer a camp program for individuals with CHARGE and their siblings. Click here for more information about Camp options.

Sibshops

Sibshops provide an opportunity for siblings to get together to bond and discuss life as a the sibling of an individual with CHARGE syndrome. Click here for more information about Sibshops.

Community

The sessions may take the most time in the Conference schedule, but we all know the backbone of our conference is simply being together. Where else can you find hundreds of people who are so knowledgeable and passionate about CHARGE syndrome? The special conversations and commonalities shared between families, professionals and education experts are truly precious and priceless takeaways from the event.

Plenty of social time and activities will be included in the schedule. More updates will be added as events are confirmed.

Conference Schedule

We highly recommend that everyone have a look online prior to conference at the conference schedule (which will be posted late Spring 2023) to try and get a preliminary idea of sessions you might want to attend.  It can be a lot to figure out once you get to conference after traveling with family, trying to getting settled at the hotel and so on.  Also, please ensure you are receiving emails from the Foundation (you can sign up for eNews here) so that you get notifications about when the program schedule will be available.