We hope you can join us in Dallas, TX, July 22-25, 2027! We will have a top notch program a with wide variety of speakers who are the leading experts in CHARGE syndrome. The four general theme areas under which most sessions are organized include: behavior, education, adult issues, and medical. There will be something for everyone!
Our special hotel room rates will be available July 16 through July 28, 2027. Click here to learn more about the hotel and book your room(s).
Thursday, July 22, 2027
- Meg Hefner Professional Day
- New – Exclusive opportunities for families! We will offer interactive small-group workshops available to Foundation members. Limited attendance – separate registration and cost required.
- Welcome Reception Dinner
Friday, July 23, 2027
- Breakfast
- General Session
- Camp throughout the day
- SibShops throughout the day
- Educational sessions throughout the day
- Lunch
- Dinner and Evening Activities
Saturday, July 24, 2027
- Breakfast
- General Session
- Camp throughout the day
- SibShops throughout the day
- Educational sessions throughout the day
- Lunch
- Dinner and Evening Activities
Sunday, July 25, 2027
- Breakfast
- General Sesssion
- Camp
- SibShops
- Conference ends at noon on Sunday
Conference Schedule
We highly recommend that everyone look online at the Conference Agenda and Conference App, prior to arriving in Phoenix to get a preliminary idea of sessions you might want to attend. It can be a lot to figure out once you get to Conference after traveling with family, trying to get settled at the hotel, and so on.
The Agenda for the 17th International CHARGE Syndrome Conference will come out sometime in Spring 2027. See the Agenda for 2025 below to get an idea of what to expect.
Please ensure you are receiving emails from the Foundation (you can sign up for eNews here) so that you get notifications about Conference, including the Program Schedule and the Conference app.
What’s Included in Conference
Meals
For general Conference (not including Meg Hefner Professional Day), the following meals will be included in the price of your ticket:
Breakfast: Friday, Saturday, and Sunday
Lunch: Friday, and Saturday
Dinner: Thursday, Friday, and Saturday
Coffee breaks will be provided throughout the Conference schedule. Blenders will be provided for those requiring a blended diet.
General Sessions
We begin each day in General Session, with everyone together in one large room.
Breakout Sessions
After general sessions, we have a short break and then the breakout sessions begin. The breakout sessions happen during the rest of the day. There are multiple sessions happening at the same time and everyone is free to choose whichever breakout session interests them. The schedule and handouts will be available online prior to Conference and will be helpful in terms of making decisions about which sessions you might want to attend. Some families decide to “divide and conquer,” splitting up and going to different sessions when there is more than one session happening at the same time that the family would like to attend. There are no breakouts on Sunday as the program closes at noon after general session.
Information Central
During Information Central, you can browse posters and speak to the many wonderful professionals who are at the conference. If you have questions, this is the time to find the professional who can help!
Meg Hefner Professional Day
Meg Hefner Professional Day is Thursday and requires a separate registration fee. Click here for more information for Professionals.
Research at Conference
Be a part of groundbreaking research taking place at Conference. Click here to learn more.
Camp
We are pleased to offer a camp program for individuals with CHARGE and their siblings. Click here for more information about Camp options.
Sibshops
Sibshops provide an opportunity for siblings to get together to bond and discuss life as a the sibling of an individual with CHARGE syndrome. Click here for more information about Sibshops.
Evening Events
All evening events will begin at 6:30 PM.
THURSDAY
- Dinner
- Evening Event – Welcome Reception
FRIDAY
- Dinner
- Evening Event – Game Night
SATURDAY
- Dinner
- Evening Event – “Boot Scootin’ Boogie” Dance Party
- Basket Raffle & Silent Auction
Our fun-filled auctions are always among of the highlights of the CHARGE Conference weekend festivities. Once again, we will be having a Silent Auction, Basket Raffle, and door prizes to raise money for the CHARGE Syndrome Foundation.
Click here to learn more about donating items and the items that will be available.
Purchase tickets at the Sales Table. We accept Cash/Check, Credit Card, PayPal or Apple Pay.
Sales Table
Support the Foundation by visiting the Sales Table for limited edition CHARGE syndrome awareness merchandise and purchase raffle and auction tickets.
We accept Cash/Check, Credit Card, PayPal or Apple Pay.
CHARGE Awards
Over the years, the Foundation has recognized individuals, couples, organizations, groups, and families who have made meaningful contributions to advancing its mission. These honorees have played a vital role in expanding support networks, advancing knowledge, driving scientific and clinical progress, and championing the lifelong potential of individuals with CHARGE syndrome.
We will once again recognize deserving people during our 17th International CHARGE Syndrome Conference. Recipients do not need to be present to receive an award.
Community
The sessions may take the most time in the Conference schedule, but we all know the backbone of our conference is simply being together. Where else can you find hundreds of people who are so knowledgeable and passionate about CHARGE syndrome? The special conversations and commonalities shared between families, professionals and education experts are truly precious and priceless takeaways from the event.
Connect with the Conference Community before and during Conference, by joining our Conference Facebook Group.
Ask the Experts – All About Conference
Watch our panel of parents, Board Members, and experts discuss all the ins and outs of Conference! Learn what your family can expect, what types of sessions and events will be offered, ways you can fund your trip, even what you should pack!
