The 16th International CHARGE Syndrome Conference, “The Grand Adventure,” will be held at the JW Marriott® Phoenix Desert Ridge Resort & Spa, in Phoenix, AZ , July 24-27, 2025.
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Join us in Phoenix, AZ for the largest worldwide gathering of individuals with CHARGE, their families, professionals and experts on CHARGE syndrome.
Camp requires a separate registration.
Our Conference hotel room block is now open! Deadline to book is June 29.
Past attendees have compared Conference to a family reunion, a life-changing experience, and equated it to coming home! At Conference, your family will get to share experiences, learn from one another, make lifelong friendships, experience a sense of belonging unlike any other, and hear from the world’s top experts in CHARGE syndrome. You don’t want to miss it!
Learn about past attendees’ experiences first hand:
Click the links below for all the information you need about Conference!
Top 10 Questions Asked About Conference
Family Conference Checklist
When and Where
How Do I Register?
Pre-Order Conference Merchandise
What to Expect
Basket Raffle and Silent Auction
Camp
CHARGE Art Show
Research at Conference
Sessions Agenda
Who Can Attend?
Accessibility
Conference Permissions and Policies
What are the Funding Options Available to Families?
Participate in Research at Conference
Be Paired with Davenport Fellows
Volunteer at Conference
Become an Exhibitor
Become a Sponsor
Meet the Conference Sponsors
Opportunities for Professionals
Become a Conference Presenter – DEADLINE FOR SUBMISSIONS HAS PASSED
Davenport Fellowship – DEADLINE FOR APPLICATIONS HAS PASSED
Research at Conference
2025 Conference Presentations
To see what you can expect, check out our Sessions Agenda.
Sessions Agenda
Previous Conferences
The first CHARGE conference was held in 1993 in St. Louis, Missouri. It was attended by over 250 people, including about 50 children with CHARGE.
Since then, the biennial conference has grown in its significance and impact, attracting over 1,200 attendees and over 250 individuals with CHARGE syndrome at recent Conferences. Attendees include first-time attendees, new parents, individuals with CHARGE, families, and professionals all with the common desire to learn more about the myriad of medical and developmental issues facing individuals with CHARGE syndrome.
Parents have described Conference as a rite of passage, a family reunion, a place to meet and network with others facing the same challenges, an opportunity to learn from professionals (medical, clinical and educational), and a chance to participate in CHARGE research while becoming more informed about how to help their child.
We are committed to continue holding CHARGE conferences every two years with rotating geographic locations.
Explore past conference handouts:
