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Conference

The 16th International CHARGE Syndrome Conference, “The Grand Adventure,” will be held at the JW Marriott® Phoenix Desert Ridge Resort & Spa, in Phoenix, AZ , July 24-27, 2025.

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Join us in Phoenix, AZ for the largest worldwide gathering of individuals with CHARGE, their families, professionals and experts on CHARGE syndrome.

REGISTER NOW

Camp requires a separate registration.

REGISTER FOR CAMP

Our Conference hotel room block is now open! Deadline to book is June 29.

Reserve Your Room

Past attendees have compared Conference to a family reunion, a life-changing experience, and equated it to coming home! At Conference, your family will get to share experiences, learn from one another, make lifelong friendships, experience a sense of belonging unlike any other, and hear from the world’s top experts in CHARGE syndrome. You don’t want to miss it!

WATCH 2025 VIDEO

Learn about past attendees’ experiences first hand:

WATCH VIDEO READ STORIES

Click the links below for all the information you need about Conference!

Top 10 Questions Asked About Conference

Family Conference Checklist

When and Where

How Do I Register?

Pre-Order Conference Merchandise

What to Expect

  Basket Raffle and Silent Auction
  Camp
  CHARGE Art Show
  Research at Conference
  Sessions Agenda

Who Can Attend?

Accessibility

Conference Permissions and Policies

What are the Funding Options Available to Families?

Participate in Research at Conference

  Be Paired with Davenport Fellows

Volunteer at Conference

Become an Exhibitor

Become a Sponsor

  Meet the Conference Sponsors

Opportunities for Professionals

  Become a Conference Presenter – DEADLINE FOR SUBMISSIONS HAS PASSED

  Davenport Fellowship – DEADLINE FOR APPLICATIONS HAS PASSED

  Research at Conference

2025 Conference Presentations

To see what you can expect, check out our Sessions Agenda.

Sessions Agenda


Previous Conferences

The first CHARGE conference was held in 1993 in St. Louis, Missouri. It was attended by over 250 people, including about 50 children with CHARGE.

Since then, the biennial conference has grown in its significance and impact, attracting over 1,200 attendees and over 250 individuals with CHARGE syndrome at recent Conferences. Attendees include first-time attendees, new parents, individuals with CHARGE, families, and professionals all with the common desire to learn more about the myriad of medical and developmental issues facing individuals with CHARGE syndrome.

Parents have described Conference as a rite of passage, a family reunion, a place to meet and network with others facing the same challenges, an opportunity to learn from professionals (medical, clinical and educational), and a chance to participate in CHARGE research while becoming more informed about how to help their child.

We are committed to continue holding CHARGE conferences every two years with rotating geographic locations.

Explore past conference handouts:

Charge ONline 2021 logo

Taking CHARGE in 2017 Orlando

 

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View past Conference photos.

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