Executive Director

Lisa Cunningham
Kansas
Lisa Cunningham is an experienced and collaborative leader in the nonprofit sector. She is driven by a strong passion for strategic collaboration, targeted outreach and equitable service provision. As Executive Director of the CHARGE Syndrome Foundation, Lisa will provide leadership for the growing Foundation as it serves individuals with CHARGE Syndrome, their families and the professionals who support them.
Prior to joining the CHARGE Syndrome Foundation, Lisa worked as Executive Director of the San Antonio Education Partnership and the Bexar County Family Justice Center Foundation. In total, Lisa has a combined 20 years of leadership, business and nonprofit experience.
Lisa holds multiple nonprofit certifications, including the San Antonio Area Foundation’s Values Based Leadership certification, a Graduate Certificate in Nonprofit Administration and Leadership from the University of Texas at San Antonio, as well as certificates from Our Lady of the Lake University in Nonprofit Leadership, Fundraising, and Grant Writing. She holds Master’s and Bachelor’s degrees from the University of Texas at San Antonio, where she also earned a Graduate Certification in Nonprofit Finance. Lisa serves on several professional councils, including her alma mater’s Alumni Leadership Advisory Council and the United Way’s Early Childhood Issue Council.
She lives on a farm in Kansas with her husband, Ethan, and has two daughters, Maddie and Haley.
You can reach Lisa by email.
Outreach and Engagement Manager

Lourdes E. Quintana Baez, MS, ITDS
Florida
Born and raised in Bayamón, Puerto Rico, Lourdes has devoted her life to serving and advocating for families of children with diverse abilities. Her calling is deeply personal. Growing up as the sibling of a remarkable individual with cerebral palsy and complex medical needs, she experienced firsthand the emotional, logistical, and financial realities families navigate each day. That lived experience shaped her empathy, strengthened her resilience, and ignited her lifelong commitment to being a voice for families whose journeys often go unseen.
Lourdes earned her Bachelor’s degree in Clinical Psychology from Universidad del Sagrado Corazón, where she began her professional career at the Center for Personal Development, directing wellness and prevention programs for young children. She later completed her Master’s degree in Clinical Psychology at Albizu University, further deepening her clinical knowledge and dedication to family-centered care.
After years in private practice, Lourdes relocated to Orlando, Florida, in 1999 to serve as a Mental Health Therapist. As a Certified Infant Toddler Developmental Specialist, she supported young children and families before joining the Developmental Center for Infants and Children, which operates the Early Intervention Program for Central Florida. In this role, she partnered closely with parents of children from birth to 36 months with developmental delays, guiding them through moments of uncertainty and empowering them with practical, research-based strategies to incorporate into everyday routines. Her work focused on strengthening language, cognitive, motor, adaptive, and social-emotional development while helping families feel confident in their ability to nurture their child’s growth.
With more than 25 years of experience in the disability field, Lourdes combines professional expertise with the deep compassion that comes from personal experience. In 2022, she joined the CHARGE Syndrome Foundation, where she leads virtual support groups, oversees the Family Liaison and Family Assistance Programs, and collaborates with partners to expand meaningful resources for families. As a native Spanish speaker, she also strengthens engagement with Spanish-speaking families through Familia CHARGE—an initiative supporting families across the United States and Latin America.
Through compassionate leadership, cultural connection, and unwavering advocacy, Lourdes continues to champion families caring for loved ones with complex medical needs—ensuring they feel understood, supported, and empowered at every stage of their journey.
You can reach Lourdes by email.
Marketing and Communications Manager

Torrie Rathjen
New Jersey
Torrie Rathjen has spent her career specializing in Direct Marketing, Social Media, Graphic Design, and Website Maintenance. She has worked as a volunteer for many non-profit organizations, and local fundraising and community events.
Torrie has a Bachelor of Arts from The University of Delaware.
Torrie has lived in many locations throughout the United States, but currently calls New Jersey home. She and her husband have their hands full with twin teenagers and a Miniature Schnauzer.
In her free-time you can find Torrie on the field and court, playing volleyball, or cheering on her kids from the stands at soccer, lacrosse, volleyball, and cross-country. She also spends her time traveling, learning new languages, and running a local book club.
You can reach Torrie by email.
Finance and Administrative Specialist

Becky Read
Kansas
Becky has built a successful career in the accounting field, beginning at the University of Iowa in Iowa City, IA, before relocating to Wichita, KS, seven years ago. Throughout her professional journey, she discovered a deep passion for serving the non-profit sector, where she finds the greatest fulfillment.
Becky holds a Bachelor of Arts from the University of Phoenix Global and later earned her Master’s in Business with a focus in Accounting, driven by her love of learning. (She often says she’d be a full-time student if she could get paid for it!) She is an active member of several community organizations and is deeply committed to helping those less fortunate.
Outside of work, Becky is a proud mother of four, a grandmother to one, and a devoted dog mom to a Jack Russell and an Old English Bulldog. She makes the most of her free time outdoors—whether exploring a new trail, playing pickleball or tennis, joining a friendly game of flag football, or simply listening to a podcast or enjoying a good book in the fresh air.
You can reach Becky by email.
