It has been a landmark year for the CHARGE Syndrome Foundation. In fact, we broke all-time Foundation records in conference scholarships and program awards this year, reaching more families than ever before and expanding our impact in ways we are incredibly proud of.
One of the year’s defining moments was hosting the 16th International CHARGE Syndrome Conference in Phoenix, AZ, where families, professionals, and partners came together to learn, connect, and strengthen our community. Our Family Assistance Programs reached new heights, providing life-changing support and opening doors for hundreds of individuals with CHARGE syndrome and their families.
Across education, outreach, and research, our work has grown in both depth and reach. These accomplishments reflect our shared commitment to driving meaningful progress and building a world where every person with CHARGE syndrome has the opportunity to thrive.
See the impact we have made this year:


