Home > For Families > CHARGE Accounts

CHARGE Accounts

Newsletter Archive

CHARGE Accounts Newsletter Submission Guidelines




 Winter 2018 (PDF, 3 MB)
Articles Include:

  • Director of Outreach Update & Intervener Webinar Series
  • Remembering Dr. Jan van Dijk
  • KeepOns for Glasses
  • Wanted: Committee Members
  • Focus On Fundraising
  • Announcements
  • Fellows: Reflections from the 2017 Conference
  • Creativity Corner with Meri Dwyer
  • Strategies & Equipment to Assist Movement

Fall 2017 (PDF,5.25 MB)
Articles Include:

  • A New Friendship
  • Conference Highlights
  • 2017 Davenport CHARGE Syndrome Fellows
  • Focus on Fundraising
  • Enhancing Movement Opportunities in Your Home
  • Research Update

Spring 2017 (PDF,1.90 MB)
Articles Include:

  • Conference Prep & Insight
  • Davenport CHARGE Fellows Announced
  • EWRAP Recipients
  • Appropriate Physical Education Service in Schools: Laws and Knowledge
  • Focus on Fundraising

Winter 2017 (PDF, 3.95 MB)
Articles Include:

  • Conference Information
  • The Importance of Movement for Individuals with CHARGE syndrome
  • Diego’s Superhero Adventure
  • Oh, Booger!
  • 3rd Annual Ethan Wolfe Recreational Assistance Program
  • Sandra Davenport Fellowship Program
  • Why It’s OK to Ask Me About My Child
  • Embracing the Different
  • Chromatin in Development & Disease



Fall 2016 (PDF, 2 MB) – Special Conference Issue
Articles Include:

  • Learning Together: Program
  • Being Together: Sessions & Schedule
  • Professional Day
  • Scholarships
  • Call for Presentations
  • Camp
  • The Hotel & Meals
  • Orlando Area
  • Registration
  • Conference Funding Guide


Summer 2016 (PDF, 2 MB)
Articles Include:

  • In Memory of Marion
  • Personal Passports
  • Davenport Fellows
  • Deaf-Blind Summit report
  • Family Leadership
  • Applying for Disability
  • Charge It for CHARGE

Spring 2016 (PDF, 1.24 MB)
Articles Include:

  • Communication Challenges
  • Parent Connections
  • Data Dispatch
  • Focus on Fundraising
  • Taking CHARGE!

Winter 2016 (PDF, 1.39MB)
Articles Include:

  • Insight into Adulthood
  • Davenport Fellows
  • Parent Liaisons
  • 2nd EWRAP Campaign

Fall 2015 (PDF, 3.6MB)
Articles Include:

  • Conference Recap
  • Research at Conference
  • First Ethan Wolfe Recreational Assistance Program Recipients
  • Eighth Annual Charge It for CHARGE

Spring 2015 (PDF, 1.21MB)
Articles Include:

  • Upcoming CHARGE research at conference
  • Honoring Kathy McNulty
  • Sandra Davenport CHARGE Syndrome Fellows Program
  • Siblings Advice
  • Power of Families as Communication Partners

Fall 2014 (PDF, 2.49MB)
Articles Include:

  • U of Michigan Honors Meg Hefner
  • Webinar Updates
  • Board Nominations
  • Stories from the CHARGE Community
Read More About CHARGE Accounts From 2004-2013

Summer/Fall 2013 (PDF, 9.47MB)
Articles Include:

  • 11th International CHARGE Syndrome Conference Recap
  • Accommodation Cards
  • Outreach Infomercial

Spring 2013 (PDF, 1.1MB)
Articles include:

  • Social Media: Is It Really Helpful? It’s How You Use It
  • Open Hands, Open Access: Deaf-Blind Intervener Learning Modules
  • The Diagnosis Is Not the Person

Winter 2012 (PDF, 2.2MB)
Articles include:

  • Sucessful Adult Outcomes for Students in Transition
  • Bedwetting Solution
  • I Can Connect! Technology Program

Fall 2012 (PDF, 2.8MB)
Articles include:

  • Social Skills: Social Skills & Video Modeling
  • Research Update
  • Conference Funding Guide

Summer 2012 (PDF, 2.27MB)
Articles include:

  • iPads and the Itinerant
  • Conversations and Creativity (original writings by individuals with CHARGE)
  • Save the Date: 11th International CHARGE Syndrome Conference (Scottsdale, AZ)

Spring 2012 (PDF, 4.3MB)
Articles include:

  • So Many Ways to Have a Conversation– Full article on communication by Martha Majors from the Spring 2012 edition of CHARGE Accounts
  • Introducing CHARGE to the Classroom
  • Many Ways to Have a Conversation
  • New Screening Method for CHD7

Winter 2011 (PDF, 1.47MB)
Articles include:

  • Potty Training from a Parent’s Perspective
  • CHARGE Clinics and Seminars
  • Texas Chargers—6th Annual Retreat

Summer/Fall 2011 (PDF, 1.75MB)
Recap of 10th International CHARGE Syndrome Conference (Orlando, FL)

Spring 2011 (PDF, 751K)
Articles include:

  • Taking CHARGE of Communication
  • Going Back to Work: Sharing Our Experiences

Winter 2010 (PDF, 1.07 MB)
Articles include:

  • CHARGE Foundation Quotes 2010
  • Learning About CHARGE from Flies
  • Families’ Perceptions of Disability-Related Supports and Services: Report of a National Survey of Families Who Have
  • Children with Deafblindness

Fall 2010 (PDF, 1.03 MB)
Articles include:

  • Surviving CHARGE Syndrome as a Person Who Has CHARGE
  • Using Augmented Input Intervention Strategies
  • Survival Strategies: Six Tips
  • The MAPs Planning Process

Summer 2010 (PDF, 1.0 MB)
Articles include:

  • Family Planning special issue

Spring 2010 (PDF, 1.04MB)
Accessible, text-only version (76K)
Articles include:

  • Addressing Social Challenges of Students with CHARGE Syndrome in Middle School
  • Supporting Young Adults with CHARGE Syndrome Toward Successful Transition to Adult Life
  • Strategies for Supporting Multi-Modal Communication

Winter 2009 (PDF, 1.09MB)
Articles include:

  • Focus on Fundraising issue
  • Charge It for CHARGE: A Step-by-Step Guide
  • Websites for Parents of Children with CHARGE Syndrome

Summer/Fall 2009 (Double Issue: PDF, 2.9 MB)
Articles include:

  • Recap of 9th International CHARGE Syndrome Conference (Bloomingdale, IL)

Spring 2009 (PDF, 724K)
Articles include:

  • 3rd Annual CHARGE Retreat in Denton, TX
  • Topics from the CHARGE Listserv
  • Information on 9th International CHARGE Syndrome Conference (Bloomingdale, IL)

Winter 2008 (PDF, 547K)
Articles include:

  • People First Language
  • Finding Funds to Attend Conference

Fall 2008 (PDF, 670K)
Articles include:

  • Recap of Tennessee CHARGE Syndrome/Deafblind Weekend
  • Websites to Help with Holiday Shopping

Summer 2008 (PDF, 1270K)
Articles include:

  • Marion is 75, CHARGE Syndrome Foundation is 15
  • CHARGE Syndrome Foundation: Major Milestones
  • Tribute to Marion Norbury

Spring 2008 (PDF, 359K)
Articles include:

  • Personal Account: VitalStim Therapy
  • New at the Website: CHARGE Syndrome Professional Packet

Fall 2007 (PDF, 546K)
Articles included:

  • Recap of 8th International CHARGE Syndrome Conference (Costa Mesa, CA)

Summer 2007 (PDF, 171K)
Articles include:

  • Travel by Air
  • Chronic Pain in CHARGE

Spring 2007 (PDF, 131K)
Articles include:

  • Special Account: Pain issue
  • Fundraiser in a Box

Winter 2006 (PDF, 1.0 MB)
Articles include:

  • Independence Day: Our Story
  • Collaboration Between the CHARGE Syndrome Foundation and Other Organizations

Fall 2006 (PDF, 620 K)
Articles include:

  • International Account: News from Germany
  • Strategies for Successful Medical/Dental Appointments for Individuals Who Are Deaf-Blind

Summer 2006 (PDF, 604 K)
Articles include:

  • Adele’s Cochlear Implant Journey
  • Report on the Adult Services Committee

Spring 2006 (PDF, 1.1 MB)
Articles include:

  • Personal Accounts: Joel Saruski, Aaron Sorkin, Andrew–His 36 Hours, Laura Kenley
  • Intervention in Kentucky

Winter 2005 (PDF, 3.9 MB)
Articles include:

  • CHARGE Syndrome Fundraiser: Texas Style
  • Botox Use in CHARGE Syndrome Prevents Tracheotomy

Fall 2005 (PDF, 560 K)
Articles include:

  • Personal Account: Then and Now
  • Recap of 7th International CHARGE Syndrome Conference (Miami, FL)

Summer 2005 (PDF, 284 K)
Articles include:

  • A Review of Research Projects
  • Educational and Behavioral Implications of Missing Balance Sense in CHARGE Syndrome

Spring 2005 (PDF, 550 K)
Articles include:

  • DNA Testing for CHARGE Syndrome
  • Memorial Gifts Create Lasting Tribute to Central Michigan University Student

Fall 2004 (PDF, 688 K)
Articles include:

  • A CHARGE Gene Discovered
  • Suggestions for Creating Successful Transitions from School to Adulthood