“I know of no identified sub-group within the population of people with multi-sensory impairment who have so many medical problems, of such complexity and severity, and with so many hidden or delayed difficulties, and yet no sub-group has shown such a consistent ability to rise triumphantly above these problems”
– David Brown
Despite seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations. Parents of children with CHARGE are often heard talking about the indomitable spirit, the humor, and the compassion of their children. We spread awareness by sharing our stories of individuals and families living with CHARGE syndrome, and by recognizing special Awareness Days and Weeks that represent members of our community.
If you would like to submit a story, please click the button below:
A Day to Remember
CHARGE Syndrome Awareness Day
Deafblind Awareness Week
Feeding Tube Awareness Week
International Day of Sign Languages
Rare Disease Day
Stories of Adults with CHARGE Syndrome
Stories of Children with CHARGE Syndrome
Stories of Families Living with CHARGE Syndrome
Stories from Professionals and Caregivers in the CHARGE Community
