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Rare Disease Day Stories

2024

Watch Alainey's Story

Young boy in a striped shirt and glasses sits in a chair.

Read Alden's Story

Toddler boy with dark brown hair looks up, wearing a Born Wild t-shirt.

Read Alexander's Story

Read Alyssa's Story

Adorable baby girl with a bow in her dark brown hair, in pink glasses, wearing a pink outfit, smiles at the camera.

Read Bria's Story

Read Carson's Story

Baby boy with a trach sits on the beach.

Read Elliot's Story

Young girl with brown hair wearing a striped shirt and a black bow in her hair.

Read Francesca's Story

Happy teen girl with short brown hair and glasses poses with a lion mascot on a football field.

Read Grace's Story

Read Itay's Story

Baby boy with CHARGE syndrome has a trach, wears a striped outfit, and sits in a chair.

Read James' Story

Read Nicholas' Story

Young boy in black sweatshirt, with black hair, poses at table with cell phone in hand.

Read Parker's Story

Girl with long blonde hair and glasses in a pretty yellow dress with sandals poses outside.

Read Reese's Story

Young man in sunglasses poses outside the Rose Bowl stadium signing "I Love You", wearing a 5k Run bib.

Read Reuben's Story

Photo of young girl with glasses holding a sign that says "Jesus Loves Me' between her parents.

Read Sami's Story

Teenage boy with CHARGE syndrome in a black shirt with a pink necklace.

Read Thor's Story

Read Tyler's Story

Photo of teenage girl in glasses wearing a shirt with a zebra on it that says Care About Rare - CHARGE syndrome.

Read Vivian's Story

2023

Read Christopher's Story

Read Knox's Story

Read Jennifer's Story

Read Erika's Story

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