CHARGE syndrome « Charge Syndrome Foundation

Posts Tagged ‘CHARGE syndrome’

Fundraising Recognition

THANK YOU to all of our fundraisers – everything we are able to accomplish as a Foundation would not be possible without your ongoing support. You truly are helping to make the world a better place for people with CHARGE. Conferences is one of the major activities of the Foundation. We always keep track and […]

Charge It For CHARGE

Start your Charge It for CHARGE Campaign today! Click the button below to set up your campaign today. Login to your existing Charge It for CHARGE fundraising account: Charge It for CHARGE is our Foundation’s year-round fundraising platform. Help us continue the work to make the world a better place for all individuals with CHARGE […]

Volunteer

The CHARGE Foundation is a volunteer-driven organization. All of our advisors and board serve without compensation. The Foundation relies upon families and professionals to volunteer in all aspects of our programs. There is a volunteer role for everyone. Whether you’re interested in meeting new people, trying new challenges, or sharing your existing skills and experience, there […]

Provider Recommendation Database

The Foundation has asked families and professionals to recommend physicians or therapists who have been helpful to your family, who are knowledgeable about CHARGE syndrome or have been willing to learn and go that extra mile. While the Foundation does not endorse or recommend any specific providers, we are happy to share the information we […]

Family Liaisons

State Specific Resources The Family Liaison Project is a model of collaboration to improve the Foundation’s outreach to both families and professionals at the national level. The position will be used to build relationships, network, collaborate and disseminate information. The primary function of a Family Liaison is to: Share the latest CHARGE resources with the […]

Shop For a Cause

Help spread awareness and support the Foundation by shopping our CHARGE Syndrome Awareness Store! Another easy way to help the Foundation is through your online shopping. Choose the CHARGE Syndrome Foundation as your charity of choice on the following sites and the Foundation will receive a percentage of your purchase as a donation. You can […]

Awards and Recognition

The CHARGE Syndrome Foundation was built by volunteers — parents, professionals, and community members who dedicate their time to supporting families, organizing biennial conferences, raising awareness, and much more. While we now have a small team of paid staff who help carry out the Foundation’s important work, the spirit of these awards remains focused on recognizing […]

Our Impact

Read our full 2024 Impact Report to get an overview of some of our accomplishments and a look at our plans for the future. We remain committed to ensuring that the maximum amount of dollars received is spent directly on research, awareness, and programs to support families and individuals with CHARGE. We are proud to say […]

Our Mission

The mission of the CHARGE Syndrome Foundation: We lead and partner to improve the lives of people with CHARGE syndrome locally, nationally, and internationally through outreach, education, and research. Provide a broad network of support to individuals, families and professionals Engage in knowledge acquisition, development and dissemination Promote innovative scientific and clinical advancements Champion the […]