THANK YOU to all of our fundraisers – everything we are able to accomplish as a Foundation would not be possible without your ongoing support. You truly are helping to make the world a better place for people with CHARGE. Our conferences are one of the major activities of the Foundation. We always keep […]
“Charge It for CHARGE” is the primary online fundraising campaign of the CHARGE Syndrome Foundation. Become a fundraiser or donor. You can use e-mail and social media to raise funds for the Foundation. Your support helps fund research, outreach, and biennial international conferences. You can make a difference! Click here for a quick tutorial […]
The CHARGE Foundation is a volunteer-driven organization. All of our advisors and board serve without compensation. The Foundation relies upon families and professionals to volunteer in all aspects of our programs. There is a volunteer role for everyone. Whether you’re interested in meeting new people, trying new challenges, or sharing your existing skills and experience, there […]
The Foundation has asked families and professionals to recommend physicians or therapists who have been helpful to your family, who are knowledgeable about CHARGE syndrome or have been willing to learn and go that extra mile. If you are looking for a physician or therapist in your area, please email sheri@chargesyndrome.org – indicate your name, […]
The CHARGE Syndrome Clinical Database Project (CSCDP) is an internet-based questionnaire designed to collect clinical data on individuals with CHARGE syndrome (CS). Our aims are to: collect information on people with CS of all ages from all over the world, use the collected data to understand more about CS and how it affects different […]
State Specific Resources The State Family Liaison Project is a model of collaboration to improve the Foundation’s outreach to both families and professionals at the national level. The position will be used to build relationships, network, collaborate and disseminate information. The primary function of a State Family Liaison is to: Share the latest CHARGE resources […]
An easy way to help the Foundation is through your online shopping. Choose the CHARGE Syndrome Foundation as your charity of choice on the following sites: AmazonSmile, Goodshop, and iGive.com. The Foundation will receive a percentage of your purchase as a donation. You can shop and donate to the Foundation at the same time! […]
The CHARGE Syndrome Foundation is run almost entirely by volunteers – parents and professionals who dedicate their time to running the Foundation, supporting families, organizing biennial conferences, and even doing things like building this website. This allows the Foundation to invest 90% of funds raised into directly supporting the cause. The Foundation recognizes those who […]
View or download our impact report [PDF-2.59MB] to get an overview of some of our accomplishments and a look at our plans for the future. We remain committed to ensuring that the maximum amount of dollars received is spent directly on research, awareness, and programs […]
The mission of the CHARGE Syndrome Foundation: We lead and partner to improve the lives of people with CHARGE syndrome locally, nationally, and internationally through outreach, education, and research. Provide a broad network of support to individuals, families and professionals Engage in knowledge acquisition, development and dissemination Promote innovative scientific and clinical advancements Champion the […]
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We hope you are enjoying the new website. It is our goal to make navigation and availability of resources as user-friendly as possible. If you need help finding a resource or have a suggestion, please let us know at info@chargesyndrome.org.