Our 17th International CHARGE Syndrome Conference will be here before you know it!
Here is a checklist of things to do before Conference:
- Do I need help with funding?
- Connect with your State Deafblind Project to inquire about scholarships
- Check our Funding Guide
- CHARGE Syndrome Foundation scholarships application will open late 2026
- Hotel reservation:
- Most families will come sometime Thursday and leave Sunday afternoon
- You may extend your stay if you wish
- You need a credit card to make a reservation
- Registration
- Click here to register (Link coming 2027)
- Register by (Deadline coming in 2027) to avoid additional late fees.
- Conference is free for individuals with CHARGE syndrome of any age; however they MUST register
- Other family members that will be attending Conference sessions, Conference activities and participating in meals must register (including children 6 months and older)
- If you have any support personnel, such as nurses or interveners, traveling with you to Conference, they must also register
- CAMP (childcare)
- Click this link to register for camp (Link coming 2027)
- A separate registration is required for camp. Individuals with CHARGE syndrome of any age, and and their siblings ages 12 and under, can attend camp
- Camp is free for individuals with CHARGE syndrome of any age, but they MUST register
- There are two options for CAMP: Camp Discovery has a lower staff to camper ratio (less staff per # of campers), for siblings and more independent campers; Camp Explorer has more structure and more staff
- Caregivers can attend Camp with your child, but they must be registered for camp and for Conference
- Sibshops
- For siblings ages 8-13
- Sibshops are held during the day at the same time as Conference sessions and camp. Click here for a short video about Sibshops
- If a sibling is attending camp, the Sibshops leaders will escort the sibling to and from camp
- A sibling may attend one half-day session of Sibshops
- You will have the opportunity to register for Sibshops when you register for Conference. If you have already registered, email [email protected]
- If there is enough interest, a teen Sibshop will be offered for siblings ages 14-18. The teens will gather together to share their experiences of having a sibling with CHARGE
- Junior leaders are siblings 16 years and older who will assist the Sibshops facilitators (Preference is given to siblings who have attended Sibshops at a previous Conference). Click here for more information and to apply to be a Junior Leader
- Pre-Order Conference Merchandise (Link coming 2027)
- Deadline to order will be announced in 2027
- Choose to ship to your home or avoid shipping costs and pick up at Conference
- Volunteer
- Be part of the fun!
- We are seeking volunteers with a wide range of skills and time commitments
- Use this application to find the right fit for you
- Donate items for our silent auction and basket raffles
- We are seeking items for the silent auction with a value over $250
- Gift baskets for raffle must have a combined value over $75
- You can donate items for the auction here
Questions? Email us at [email protected]
