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Family Conference Checklist

Our 16th International CHARGE Syndrome Conference will be here before you know it! Here are some things you can do now, and some dates to keep in mind:

  • Do I need help with funding?
    • Connect with your State Deafblind Project to inquire about scholarships
    • Check our Funding Guide
    • CHARGE Syndrome Foundation scholarships application window is now closed.
  • Hotel reservation: Click here to book your room as soon as possible
    • Most families will come sometime Thursday and leave Sunday afternoon
    • If you want to extend your stay, you can come in 2 days earlier and stay 2 days after Conference for the same rate of $192.00
    • You need a credit card to make a reservation
  • Registration
    • Click here to register
    • Register by June 30 to avoid additional late fees. 
    • Conference is free for individuals with CHARGE syndrome of any age; however they MUST register
    • Other family members that will be attending Conference sessions, Conference activities and participating in meals must register (including children 6 months and older)
    • If you have any support personnel, such as nurses or interveners, traveling with you to Conference, they must also register
  • CAMP (childcare)
    • Click this link to register for camp
    • A separate registration is required for camp. Individuals with CHARGE syndrome of any age, and and their siblings ages 12 and under, can attend camp
    • Camp is free for individuals with CHARGE syndrome of any age, but they MUST register
    • There are two options for CAMP: Camp Discovery has a lower staff to camper ratio (less staff per # of campers), for siblings and more independent campers; Camp Explorer has more structure and more staff
    • Caregivers can attend Camp with your child, but they must be registered for camp and for Conference
  • Sibshops
    • For siblings ages 8-13
    • Sibshops are held during the day at the same time as Conference sessions and camp. Click here for a short video about Sibshops
    • If a sibling is attending camp, the Sibshops leaders will escort the sibling to and from camp
    • A sibling may attend one half-day session of Sibshops
    • You will have the opportunity to register for Sibshops when you register for Conference. If you have already registered, email [email protected]
    • If there is enough interest, a teen Sibshop will be offered for siblings ages 14-18. The teens will gather together to share their experiences of having a sibling with CHARGE
    • Junior leaders are siblings 16 years and older who will assist the Sibshops facilitators (Preference is given to siblings who have attended Sibshops at a previous Conference). Click here for more information and to apply to be a Junior Leader
  • Pre-Order Conference Merchandise
    • Deadline to order June 20, 2025
    • Choose to ship to your home or avoid shipping costs and pick up at Conference
  • Volunteer
    • Be part of the fun!
    • We are seeking volunteers with a wide range of skills and time commitments
    • Use this application to find the right fit for you
    • Donate items for our silent auction and basket raffles
    • We are seeking items for the silent auction with a value over $250
    • Gift baskets for raffle must have a combined value over $75
    • You can donate items for the auction here

Questions? Email us at [email protected]