I was diagnosed with Tetralogy of Fallot after being born prematurely. I was also diagnosed with choanal atresia (which was corrected when I was around 1) and I am visually impaired and hard of hearing. I also have slight balance issues. I enjoy reading, writing, baking, and cooking.
I appreciate the ways CHARGE makes me unique. One day I was in the doctor’s office and the doctor was stumped by a part of my physiology. I turned to my mom and said “Well, I guess I’m just a phenomenon.” I believe the CHARGE syndrome community is full of phenomenons.
