We received a CHARGE diagnosis just after Delaney’s 3rd birthday. Living in a rural area, it was a struggle to get information on CHARGE syndrome from our care team. I relied on the invaluable support of the CHARGE community. “Alone we are rare. Together we are strong”. We need each other! Thanks to the amazing CHARGE community and their recommendations, Delaney will be visiting the Cincinnati CHARGE Clinic to be sure she is getting the care she needs and deserves.
Our CHARGErs are strong, resilient, and beautiful. I am so proud to be a part of such a special life.
