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West Virginia

Jenny Forren

Who’s In Your Family?

Jenny (mom), Willie (dad), Eli (has CHARGE syndrome)

What do you want people to know about your family?

Jenny works part time as medical assistant and Willie is a farm manager. We live in very rural area, but love every bit of it! Eli is almost 2 years old. He has come so far and continues to grow and learn.

Why do you Volunteer with the Foundation?

When I first learned of my son’s diagnosis, I felt so alone and scared. Connecting with other families helped me see I wasn’t alone in this. I hope to be that helping hand in other families’ journey with CHARGE and help them connect with the foundation.

What activities do you like to do?

Our family loves spending time outdoors: walking, fishing, riding on trails. Eli loves being outside! We would rather have a family cookout than dining at a restaurant. Some of Eli’s favorite activities are books and puzzles. He loves animals, especially ducks!

To contact your state’s Family Liaison please email Lourdes Quintana at Lourdes@chargesyndrome.org.