Who is in your family?
Davis, Anna (wife), Kenna (daughter), Elliot (son with CHARGE)
What do you want people to know about your family?
We’ve learned that we can do hard things—and yes, I know that sounds cliché. Going through everything with Elliot has been the greatest challenge of our lives so far, and it has also been infinitely rewarding. Our family has grown closer together. We love using ASL to communicate, and we love the connections we’ve made at deaf-blind events in Utah and at CHARGE conferences.
Why do you volunteer with the Foundation?
For our family, the first few years after Elliot was born were the hardest. At the time, Utah did not have a liaison, and I truly believe it would have made a meaningful difference to have someone we could connect with—someone who understood what we were experiencing and could relate to our journey. I still remember the first time my wife and I met other parents of a child with CHARGE. Their son was older, and hearing about their experiences was incredibly insightful. It was the first time we truly felt seen and understood. While we are fortunate to have supportive friends and family, connecting with another family who has lived experience with CHARGE is different in a powerful way. I want to be a friendly, approachable face for families navigating those difficult early years, and to help point them toward resources—because you don’t know what you don’t know.
What activities do you/your family like to do?
I like to build LEGO sets, ski, mountain bike, listen to fantasy books (anything Brandon Sanderson, Red Rising, LOTR to list a few), read books my book club has chosen, go out to lunch with friends and catch up Our family loves to watch movies, have random dance parties at home, play board/card/video games, travel, and all things Disney (love Disneyland)
To contact your state’s Family Liaison, or if you are interested in becoming a Family Liaison, please email [email protected].
