Who is in your family?
Erin, Chris, Daniel (30), Dylan (24), David (21 CHARGE Syndrome), Drew (19)
What do you want people to know about your family?
We are a very active family who loves staying busy, traveling, and spending time together. Our journey with David and CHARGE syndrome has shaped our family in so many ways, and we are incredibly grateful for the people who have been part of that journey.
Why do you volunteer with the Foundation?
The CHARGE Syndrome Foundation community has been a lifeline for our family throughout our journey. The support, connections, and shared experiences have meant more to us than words can express. As our boys grow up and begin settling into the next stages of their lives, we feel we are in a place where we can give back to a community that has given us so much. I hope to help other families feel connected, supported and reminded that they are not alone on this journey.
What activities do you/your family like to do?
We enjoy an active lifestyle and love traveling, walking, working out, watching sports, and spending time together. With our boys growing up, we especially enjoy finding opportunities to get together, explore new places and make memories along the way.
To contact your Family Liaison, please email [email protected]
