Who is in your family?
My husband Daniel, my daughter Charlee, my son Jack, and our littlest daughter Honey. Jack is our son with CHARGE syndrome.
What do you want people to know about your family?
Life is full with CHARGE.
Why do you volunteer with the Foundation?
I know what it’s like to feel lost in a new diagnosis. We found the Foundation while Jack was still in the NICU. Connection to the Foundation was key for me, I wanted to know there were families just like mine in the same shoes. It opened our eyes and hearts to all that we didn’t know we needed.
What activities do you/your family like to do?
We love to swim, play outside, have movie nights, and explore new places.
To contact your state’s Family Liaison, or if you are interested in becoming a Family Liaison, please email [email protected].
