Who is in your family?
I am an adult with CHARGE syndrome who lives independently.
Soy una persona adulta con síndrome de CHARGE que vive de forma independiente.
What do you want people to know about your family?
In 2023, at the age of 38, I discovered that I am part of the CHARGE Syndrome community. I was born with hearing loss (I use hearing aids), vision problems (I wear glasses), anosmia, and a cleft lip and palate. I currently hold a Ph.D. in International and Interregional Business and work as a university professor of entrepreneurship at both undergraduate and graduate levels. In Puerto Rico, I have organized and collaborated on various events supporting entrepreneurs with disabilities. I have conducted workshops and academic conferences in several Latin American countries, including Nicaragua, Peru, Colombia, Ecuador, and Brazil. Additionally, I have participated in international missions in Cusco and Lima (Peru), where I have helped share the gospel of Christ with people with disabilities. In 2025, at the biennial CHARGE Syndrome Conference held in Phoenix, I had the opportunity to share my life story and achievements as an individual with CHARGE Syndrome. This experience served as a testimony of how God has allowed me to achieve success and overcome life’s challenges. I am currently collaborating with the CHARGE Syndrome Foundation to identify cases in Puerto Rico.
En el año 2023, a los 38 años, descubrí que formo parte de la comunidad con Síndrome de CHARGE. Nací con pérdida auditiva (uso audífonos), problemas de visión (uso espejuelos), anosmia y con labio leporino y paladar hendido. Actualmente poseo un doctorado en Negocios Internacionales e Interregionales y me desempeño como profesor universitario de emprendimiento, tanto a nivel graduado como subgraduado. En Puerto Rico, he organizado y colaborado en diversos eventos en apoyo a los emprendedores con discapacidad. He impartido talleres y conferencias académicas en varios países de América Latina, incluyendo Nicaragua, Perú, Colombia, Ecuador y Brasil. Además, he participado en misiones internacionales en Cusco y Lima (Perú), donde he colaborado en llevar el evangelio de Cristo a personas con discapacidad. En el año 2025, durante la conferencia bianual del Síndrome de CHARGE celebrada en Phoenix, tuve la oportunidad de compartir mi historia de vida y mis logros como individuo con Síndrome de CHARGE. Esta experiencia fue un testimonio de cómo Dios me ha permitido alcanzar el éxito y superar los desafíos de la vida. Actualmente estiy colaborando con la Fundación Síndrome de Charge para identificar casos en Puerto Rico.
Why do you volunteer with the Foundation?
My greatest wish is to identify families and individuals with CHARGE Syndrome in Puerto Rico and connect them with the CHARGE Syndrome Foundation, as well as with other families and individuals affected in Latin America. In this way, they can receive the necessary support and take part in the biennial conferences. My Facebook page link about CHARGE Syndrome is: https://www.facebook.com/share/1HAVudMtk2/?mibextid=wwXIfr
Mi mayor deseo es identificar a las familias e individuos con el Síndrome de CHARGE en Puerto Rico y conectarlos con la Fundación Síndrome de CHARGE, así como con otras familias e individuos afectados en Latinoamérica. De esta manera, podrán recibir el apoyo necesario y participar en las conferencias bianuales. Mi enlace de mi página de Facebook sobre el Síndrome de Charge es : https://www.facebook.com/share/1HAVudMtk2/?mibextid=wwXIfr
What activities do you/your family like to do?
One of my favorite activities is traveling around the world and learning about other cultures. Another one of my passions is teaching in various international settings.
Una de mis actividades favoritas es viajar por el mundo y conocer otras culturas. Otra de mis pasiones es enseñar en distintos contextos internacionales.
To contact your state’s Family Liaison, or if you are interested in becoming a Family Liaison, please email [email protected].
