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Amanda Kutzura

Who’s In Your Family?

My husband, Jeremy, myself, and our two sons, Hunter (4) and Tucker (1)

What do you want people to know about your family?

I am a teacher of students with visual impairments and a certified Orientation and Mobility specialist. Although I’m new to the parent role, I’ve worked with students with CHARGE for the past 14 years. We are excited to meet other CHARGE families!

Why do you Volunteer with the Foundation?

We were fortunate that I already knew what CHARGE was when Tucker was diagnosed. I want to help support families who don’t have the background that we do and help them through the tough times.

What activities do you like to do?

We are a very outdoorsy family. We enjoy camping and fishing. Hunter and Tucker love catching frogs and crawfish. We also enjoy geocaching as a family. Hunter does karate and Jeremy enjoys hunting.

To contact your state’s Family Liaison please email Lourdes Quintana at Lourdes@chargesyndrome.org.