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New Jersey

Kristine Gargiulo

Family with mom, dad, daughter and two sons, one of whom has CHARGE syndrome. Family dressed for a fancy occasion with mom, dad, daughter and two sons, one of whom has CHARGE syndrome. Three small children, one of whom has CHARGE syndrome, holding a newborn baby. Young boy with CHARGE syndrome, wearing glasses and looking off into the distance. Young boy with CHARGE syndrome, wearing glasses poses with a stroller.

 

Who is in your family?

Anthony (husband), Finn (my child with Charge), siblings Reagan, Eli and Henry

What do you want people to know about your family?

We value our faith the most, and it has carried us through some dark days while on this CHARGE journey.

Why do you volunteer with the Foundation?

My son Finn was diagnosed a year after he was born. The first years of his diagnosis were the hardest. I would like to be of service and help to those on this journey of disability parenting like us.

What activities do you/your family like to do?

We love being outside and being in nature! Our favorite family pastimes are going camping, playing board games, going to movie nights, and eating together.

To contact your state’s Family Liaison, please email Lourdes Quintana at Lourdes@chargesyndrome.org.