Who is in you family?
Myself, my husband Noah, daughter Addison and son Benjamin.
What do you want people to know about your family?
We live in Las Vegas. I am an audiologist and my husband works in the food industry on the strip. We met in Hawaii and after we got married we decided to move back to the mainland. Shortly after moving here we had our children, Addison and Benjamin. When Benjamin was born it was quite a shock to learn that he has CHARGE syndrome. The CHARGE Syndrome Foundation and the state liaison were a huge help in helping us navigate our new reality and it is my honor to give back to the CHARGE community!
Why do you volunteer with the Foundation?
To help support other families who have a loved one with CHARGE syndrome and help raise awareness of CHARGE syndrome.
What activities do you/your family like to do?
We enjoy swimming, riding bikes, hiking, going to playground playing Roblox, watching Dancing with the Stars.
To contact your Family Liaison, please email [email protected].
