Who is in your family?
Shawn (me), Raymond (Husband), Cole, and Parker
What do you want people to know about your family?
We are a family who values our loved ones, our friendships, and our supportive community. We are also big dog lovers – our dogs keeping us laughing with their silly antics such as letting themselves in whenever they please. Raymond, Cole, and Parker keep the fun going with their quick wit and silly jokes.
Why do you volunteer with the Foundation?
The Foundation is my “go to” for all things related to CHARGE syndrome. In Cole’s early years, I clung to the hope, the education and the support provided by the Foundation. I was completely overwhelmed with Cole’s medical needs and the Foundation helped me navigate this unfamiliar path. As Cole progressed, not only was I benefiting from the Foundation but Cole began to benefit by meeting others who are like him. So, I volunteer to give back and build relationships in our community.
What activities do you/your family like to do?
We enjoy walking our dogs, hiking on easier trails, movies, hanging out with our extended family and friends, and traveling together.
If you would like to contact your Family Liaison, please email [email protected]
