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Katrina Michel

Who’s In Your Family?

  • Liliana Michel (age 2)
  • Katrina Michel (mom)

What do you want people to know about your family?

  • Home is Sarasota, Florida (about an hour south of Tampa).
  • Mom graduated as a physical therapist assistant, but is keeping focus on caregiving to Lili.
  • Lili works very hard in her daily therapies; enjoys swings, rocking chairs and all things water!

Why do you volunteer with the Foundation?

Choosing to volunteer my time for the Foundation because I love to see families and children connect, love hunting for resources to help families better understand their children, and discover the opportunities to gather and enjoy the gift of life with their loved ones. As CHARGE Syndrome is rare, anything to promote the Foundation and all of their hard work, it guarantees comfort to the next family receiving diagnosis knowing they are not alone, and can connect with each other when looking for advice, reassurance, education, latest research etc..

What activities do you like to do?

Museums, Snuggling, Swimming, Eating, and Attending Conferences

To contact your state’s Family Liaison, please email Lourdes Quintana at Lourdes@chargesyndrome.org.