Iris Filkins
Who is in your family?
Myself, my husband, Kyle, and our daughters, Ayla (7) and Remi (4)
What do you want people to know about your family?
- We live in Arvada, Colorado. Kyle is a Colorado native from a small town in the mountains, and I’m originally from Tacoma, Washington.
- Kyle works in Health & Safety for a local university, and I’m an accountant.
- Ayla is a great big sister and a helpful role model.
- Our family is learning ASL, participating in local events, and advocating for Remi as best as we can.
- This is not a journey we were prepared to take, but we’re learning as we go, and Remi is teaching us as she goes. She is so loved and supported by our family, and we’re navigating this journey together.
Why do you volunteer with the Foundation?
I volunteer for the Foundation because I’m incredibly grateful for the support we received when Remi was first born and the support we continue to receive from other families. Knowing other medical parents can be so helpful – sometimes more so than the medical professionals, so I love having the opportunity to give back and help other families.
What activities do you/your family like to do?
We enjoy going on family adventures, camping, having dance parties, swimming, and hopefully traveling more in the years to come.
To contact your state’s Family Liaison, or if you are interested in becoming a Family Liaison, please email [email protected].
