Who is in your family?
Myself (Deanna, 33), Liam(11), and Jane (10)
What do you want people to know about your family?
I am originally from California but moved to Indiana in 2010. We recently relocated to Arkansas to be closer to family. Liam was born with CHARGE. He has been through several surgeries with a lot of bumps in the road but he doesn’t let that stop him. We are working to learn ASL and get Liam communicating more.
Why do you volunteer with the Foundation?
I want other families to know they are not alone and help provide as much information as I can to help ease stress that comes along with the process
What activities do you/your family like to do?
We are mostly homebodies. We do enjoy the Holiday season. Liam loves anything with lights so Christmas decorating starts early for us. Anything with fireworks and glowsticks are a big hit as well! Building with blocks is a loved activity
To contact your Family Liaison, please email [email protected]
