Be a part of something great! Becoming a member is easy & impactful.
Members are the lifeblood of the Foundation. By working together, we can create a better world for all individuals with CHARGE syndrome.
Whether an annual member or one of the four-lifetime levels (see levels below), every membership shows that YOU support the largest organization dedicated solely to CHARGE syndrome. Becoming a member provides your voice to increase awareness, educate others, and encourage research.
Support Critical Research & Family Assistance Programs
Your membership directly supports research initiatives and programs that improve the lives of individuals with CHARGE syndrome.
Voting Rights & Surveys
As a member, you’ll have the privilege to vote in board elections and participate in member surveys, giving you a voice in the Foundation’s future direction.
Exclusive Resources & Content
Unlock access to specialized webinars, workshops, and in-depth materials to help you stay informed about CHARGE syndrome.
Conference Benefits
All members have priority access to Sibshops. In addition, Lifetime members enjoy discounted registration.
The annual & lifetime memberships include any spouse or partner and any minor child age 24 years and under living in the same household. Join as an Annual Member now and your membership is valid through December 31, 2025.
The membership levels are as follows:
Click below to read testimonials from Lifetime Members about what membership means to them.
