Parker is one of the RARES: Resilient, Authentic, Resourceful, Exceptional, and Strong. He was born prematurely at 30 weeks and endured many months in the NICU & PICU. He was in rehab and discharged when he was 13 months old. He was born at 1300 grams, but believe it – he was small but mighty. Having a rare diagnosis can be daunting to families, providers and specialists, but we took it with grace and Parker amazed us with his determination and perseverance to live life and achieve things to the best of his abilities and beyond. Having a diagnosis doesn’t define you, it fuels you. Individuals like Parker face many obstacles in life but you have to see through the diagnosis and see the person. Educating anyone who will listen, advocating for services and supports, sharing resources, creating spaces for parents to connect are critical.
