The last day of February is World Rare Disease Day, an annual event that gives us the chance to come together, show our stripes, and raise awareness for more than 300 million people affected by rare disease globally. This year the theme is, “More Than You Can Imagine.”
We use this day to help raise awareness for the CHARGE community, and all of those individuals affected – including the unique challenges we face every day.
The zebra is the official symbol of rare diseases in the United States. Every stripe has a story, share your story by:
- Filling out this form telling us how you/your child with CHARGE syndrome have accomplished “More Than You Can Imagine” to have your story featured on our Facebook page
- Showing your stripes on social media by using #ShowYourStripesForCHARGE
- Sharing the link to the link to the Rare Disease Day website on your social media
- Changing your profile picture to our CHARGE Awareness graphic, created by a member of our community
- Printing and coloring the rare disease zebra to show your stripes
- Starting a Facebook Fundraiser in honor of the day
Read stories from past Rare Disease Days:
