Who is in your family?
Husband – David, Daughters Avery and Riley, Cousin Tim (30) has CHARGE syndrome
What do you want people to know about your family?
We love spending time together! Whether its a trip to beach on Cape Cod or hanging out and watching a Disney movie, we love spending time together. I have been fortunate enough to have the support of my husband and daughters the past two years when organizing the Walk and Roll for CHARGE at Perkins School for the Blind. My daughters have become very involved in the event and “love supporting what’s important to mommy”.
Why do you volunteer with the Foundation?
I volunteer to help other families who are just like me. When my cousin Tim was born, we had never heard of CHARGE syndrome. As a family, we all came together to learn as much as we could about CHARGE and how to support my cousin. I want to support other families on this same journey and maybe ease some of their worries.
What activities do you/your family like to do?
- We love going to the beach
- Game nights
- Going on vacation
- Watching hockey – Go Bruins!
To contact your state’s Family Liaison, or if you are interested in becoming a Family Liaison, please email [email protected].
