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Foundation Supported Research

The CHARGE Syndrome Foundation is dedicated to promoting high quality clinical and scientific research into the cause and treatment of CHARGE syndrome. We have come a long way over the past couple of years, but know there is way more to be done. 

CHARGE Syndrome Foundation Scientific Research Grant Program

The CHARGE Syndrome Foundation, Inc. announced the availability of scientific research grants of up to $50,000 each.

The purpose of these grants is to promote:
a) new biomedical research into the etiology, genetic and molecular mechanisms and treatment of CHARGE syndrome or
b) new research into the medical diagnosis and treatment of CHARGE syndrome.

Both established and new investigators were encouraged to apply.  Proposals were for funding from October 1, 2020 through September 30, 2021 and may be in any area of basic, translational or epidemiological research.  Preference was given to investigators who are new to CHARGE research and/or to new projects with clear potential to lead to future funding from other agencies. For more information, please contact info@chargesyndrome.org.

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Basic Science Research Grant Application

Dates for 2020 Basic Science Research Awards

Grants Were Due: July 1, 2020
Award Start Date: October 1, 2020

If you have any questions for the Foundation, please contact david@chargesyndrome.org.

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2019 Research Grant Summary

 

The CHARGE Syndrome Foundation research awards began in 2012 and have been providing annual support for research ever since. The 2019 request for grant applications was released in February and grants are due to the Foundation on June 1, 2019. We expect the review process to be completed in the summer for grants to be awarded September 1, 2019.

The awardees were:

Title: Structured Teaching in the Classroom
Principal Investigator: Illinois State University

Title: Growth charts for children with CHARGE syndrome
Principal Investigator: D.R. Dijk, MD, Resident in medicine for people with intellectual disabilities/PhD student, UMCG. G. Bocca, MD, PhD, Pediatric endocrinologist, UMCG. Prof. C.M.A. van Ravenswaaij-Arts, MD, PhD Clinical geneticist, professor in dysmorphology, UMCG. S. la Bastide-van Gemert, PhD, Statistician, UMCG

Title: Elucidating the Role of the Second Heart Field in the Pathogenesis of AVSDs in CHARGE syndrome
Principal Investigator: Dr. Andy Wessels:  Professor and Vice-Chair, Department of Regenerative Medicine and Cell Biology, Medical University of South Carolina, Charleston, SC 

Title: “The identification and Testing of Novel Drug Targets in CHARGE syndrome”
Principal Investigator: Sean M. McBride, M.D., Ph.D. Assistant Professor in Cell Biology & Neuroscience, Psychiatry and Geriatrics and Gerontology at RowanSOM. 

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CHARGE Syndrome Foundation Clinical Research Grant Program:

The CHARGE Syndrome Foundation, Inc. announced the availability of clinical research grants of up to $25,000.  The purpose of these grants is to promote clinical research on the treatment, intervention, prevention, and support of individuals with medical, health, and behavioral issues, and their families.  Both established and new investigators were encouraged to apply.

Proposals were for funding from October 1, 2020 through September 30, 2021. Preference was given to projects that included investigators who are new to CHARGE research and to projects with clear potential to lead to future funding from other agencies.

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Clinical Research Grant Application

Dates for 2020 Clinical Research Awards

Grants Were Due: July 1, 2020
Award Start Date: October 1, 2020

If you have any questions for the Foundation, please contact david@chargesyndrome.org.

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Previous Grant Recipients Archive