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Foundation Supported Research

The CHARGE Syndrome Foundation is dedicated to promoting high quality clinical and scientific research into the cause and treatment of CHARGE syndrome. We have come a long way over the past couple of years, but know there is way more to be done. 2019 grant applications for scientific research are now available.

CHARGE Syndrome Foundation Scientific Research Grant Program

The CHARGE Syndrome Foundation, Inc. announces the availability of scientific research grants of up to $50,000 each.

The purpose of these grants is to promote:
a) new biomedical research into the etiology, genetic and molecular mechanisms and treatment of CHARGE syndrome or
b) new research into the medical diagnosis and treatment of CHARGE syndrome.

Both established and new investigators are encouraged to apply.  Proposals are for funding from September 1, 2019 through September 1, 2020 and may be in any area of basic, translational or epidemiological research.  Preference will be given to investigators who are new to CHARGE research and/or to new projects with clear potential to lead to future funding from other agencies. For more information, please contact info@chargesyndrome.org.

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Basic Science Research Grant Application

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Dates for 2019 Basic Science Research Awards

Grants Due: June 1, 2019
Award start date: Sept 1, 2019

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2018 Research Grant Summary

 

The CHARGE Syndrome Foundation research awards began in 2012 and have been providing annual support for research ever since. The 2019 request for grant applications was released in February and grants are due to the Foundation on June 1, 2019. We expect the review process to be completed in the summer for grants to be awarded September 1, 2019.

The awardees were:

Title: Investigating the Contribution of Cis-Regulatory Elements to CHARGE Syndrome
Principal Investigator: Dr. Stephanie Bielas, Ph.D., University of Michigan Medical School, Department of Human Genetics

Title: Neurobehavioral analysis of a zebrafish model of CHARGE syndrome
Principal investigator: Kurt Marsden, Ph.D., North Carolina State University, Department of Biological Sciences

Title: SoxC factors and their contribution to the ocular complications of CHARGE syndrome
Principal Investigator: Ann C. Morris Ph.D, University of Kentucky

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CHARGE Syndrome Foundation Clinical Research Grant Program:

The CHARGE Syndrome Foundation, Inc. announced the availability of clinical research grants of up to $25,000.  The purpose of these grants is to promote clinical research on the treatment, intervention, prevention, and support of individuals with medical, health, and behavioral issues, and their families.  Both established and new investigators were encouraged to apply.

Proposals are for funding from July 15, 2019 through July 15, 2020. Preference was given to projects that include investigators who are new to CHARGE research and to projects with clear potential to lead to future funding from other agencies.

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Clinical Research Grant Application

Dates for 2019 Clinical Research Awards

Grants were due: April 30, 2019
Award start date: July 15, 2019

If you have any questions for the Foundation, please contact david@chargesyndrome.org.

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