About CHARGE Syndrome Awareness Day

The first CHARGE Syndrome Awareness Day will be held internationally on August 8th. This marks the day the first paper on the discovery of the CHD7 gene was published by Professor Conny van Ravenswaaij-Arts (August 8, 2004). This day aims to raise awareness of the variability of CHARGE syndrome to help improve diagnosis and access to best practice interventions.

Here are some ways that you can participate:

• Use the following hashtags when sharing your story on social media: #CHARGESyndromeAwarenessDay
• Follow the CHARGE Syndrome Awareness Day Facebook Page: CHARGE-Syndrome Awareness Day.
• Join the CHARGE Syndrome Awareness Facebook Group: CHARGE-Syndrome Awareness Day – International Group
• Show your support by wearing CHARGE syndrome apparel. Click here to shop our Awareness Store.

Join us on August 8th to raise awareness of CHARGE syndrome around the world!