September 2020 The CHARGE Syndrome Foundation is pleased to announce that Donna Martin, chair of our Scientific Advisory Board and mother of an adult with CHARGE, is the new chair of the University of Michigan’s Department of Pediatrics. Read more at this link. In addition, Donna has been […]
CHARGE On In 2013 I was at a point in my life in which I felt I was stable enough to offer help to others in need and I was eager to find volunteer opportunities. My primary desire to help was based on a personal promise I made after the loss of my two children. The […]
By Aubrey Williams I was born into the CHARGE syndrome world on October 19, 1998 in Kansas City, Missouri. I was born with breathing complications, inability to swallow, and profound deafness in one ear. I wasn’t expected to live long because I was fighting so hard to breathe. In fact, it was my father who […]
With the rollout of the new website, our first Foundation member focus will be on Jay Brandrup, whose Internet development company, Kinetic, is responsible for building the new website. We talked to Jay about the project, which is actually Kinetic’s second time building the site. Its first major update was in 2005. “Chargesyndrome.org is in […]
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